Vangie
Member
- Joined
- Jan 5, 2018
- Messages
- 27
- Reason
- Learn about ALS
- Diagnosis
- 00/0000
- Country
- US
- State
- IN
- City
- Wabash
Hi everyone. Just wanted to update. I have successfully stayed off the site for a long time now as some recommended I just wanted to see if anyone had any advise.
I have been seeing a neurologist for over a year through IU Adult Neurology. Have had several EMG and NCS done with diagnosis of neuropathy brought in by either my treatment for leukemia or the shingles virus. He said in January you don’t have ALS or any of the bad “S’s” as MS runs in my family with my maternal grandmother and maternal first cousin. I was put on medication and off I went.
In the last week or so I got an infection in my chest and new symptoms or exacerbated symptoms took hold an has scared me greatly. Usually I have numbness in my left toes, last two. I have always had burning under the skin mixed in with tingling and feeling like my foot is weak and asleep. Now all of a sudden my right toes are numb, feel dead basically, same toes as the left. I noticed a slow response that same week to raising both arms, like there was resistance from me. Through the course of the day my left foot will be off, weak and full of tingles and burning. Then during mid day it might feel fine and my right foot is tingling and I feel like I am walking weird, slow and awkward. Like I’m in water? Then my right thigh started to feel awkward.
So basically through the course of the week following this infection I have lost strength in both arms and legs all at the same time. My feet feel constantly asleep. When I scroll through my phone my thumbs feel awkward like there is a resistance to do what usually is very natural movements. There is NOT anything I can’t do yet but ai am finding my fingers and hands are not as cooperative as before. Is this indicative to ALS? Do all the functions just suddenly start all together.
I have an MRI of the brain scheduled for this coming week then follow up with neurologist. I saw a NP and it scared me because my doc has always told me it’s not ALS but she said it’s something she has to account for because “It knows no age” I don’t really remember driving after that conversation but ai did manage to see my oncologist that day since I was in Indy. He did a Neuro exam and said it’s not ALS you are strong and your symptoms started 3 years ago. It would be more advanced at this stage. My body says I’m struggling. I have no idea what to think.
I have been seeing a neurologist for over a year through IU Adult Neurology. Have had several EMG and NCS done with diagnosis of neuropathy brought in by either my treatment for leukemia or the shingles virus. He said in January you don’t have ALS or any of the bad “S’s” as MS runs in my family with my maternal grandmother and maternal first cousin. I was put on medication and off I went.
In the last week or so I got an infection in my chest and new symptoms or exacerbated symptoms took hold an has scared me greatly. Usually I have numbness in my left toes, last two. I have always had burning under the skin mixed in with tingling and feeling like my foot is weak and asleep. Now all of a sudden my right toes are numb, feel dead basically, same toes as the left. I noticed a slow response that same week to raising both arms, like there was resistance from me. Through the course of the day my left foot will be off, weak and full of tingles and burning. Then during mid day it might feel fine and my right foot is tingling and I feel like I am walking weird, slow and awkward. Like I’m in water? Then my right thigh started to feel awkward.
So basically through the course of the week following this infection I have lost strength in both arms and legs all at the same time. My feet feel constantly asleep. When I scroll through my phone my thumbs feel awkward like there is a resistance to do what usually is very natural movements. There is NOT anything I can’t do yet but ai am finding my fingers and hands are not as cooperative as before. Is this indicative to ALS? Do all the functions just suddenly start all together.
I have an MRI of the brain scheduled for this coming week then follow up with neurologist. I saw a NP and it scared me because my doc has always told me it’s not ALS but she said it’s something she has to account for because “It knows no age” I don’t really remember driving after that conversation but ai did manage to see my oncologist that day since I was in Indy. He did a Neuro exam and said it’s not ALS you are strong and your symptoms started 3 years ago. It would be more advanced at this stage. My body says I’m struggling. I have no idea what to think.
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