could this be early symptoms

[micky999]

Hi all
Thankyou for letting me join i have a few questions not 100 % they should all be in this section firstly i had an elder brother who passed away from als /mnd last year his started from foot drop fascillations etc and took a while to diagnose after several falls etc a bit of family history my mother pssed away at 80 with alzheimers and my father passed away at 88 he had parkinsons he was in a care home but had an issue just before he died and the dr said it could be fronto temporal dementia .
So this seems as to where als /mnd could come from we dont know about grand parents as his father died of heart attack very young the grandmother lived until 70 on mums side the grandfather died of stroke at 71 and grandmother young of cancer .
Now i took it up with my GP about concerns i could get als /mnd he seemed uniterested and said no syptoms it would be millions to 1 etc and that was it while it is unusual i have started to get a few muscle fascillations but they are sporadis sometimes in underarm sometimes in a leg but they seem to dissappear could also be due to stress anxiety however i do also have at oddtimes a feeling of trembliness in an arm and leg both on same side just on some occaisions and this also comes and goes i do a bit of walking and have a physical job drywall although have not been doing much due to covid as the hospitals etc here in uk are not in good shape at the moment im a bit reluctant to see a DR also wether i am over worrying on this as i am not having any balance/ pain /physical issues and witht everything going on it could be a lot of anxiety issues im just a bit concerned as having studied a lot of literature on als /mnd there could be possibility of familial link
I was wondering if it would be worth getting an EMG test at a private hospital if this would help put the mind at rest (one way or another ) or if it would be too early for that as there doesnt seem to be many specific tests also it could be a number of other issues ...i think a lot of NHS diagnostic departments/staff have been redeployed to covid emergency in uk .....thanks for any info ..mike

 

[Nikki J]

Your post was moved. You are not newly diagnosed

you have some twitches and intermittent tremor. It doesn’t sound like MND. If you have no failure/clinical weakness in my opinion you shouldn’t try to be seen right now things are dire there as they are here with overloaded medical facilities. I would suggest stopping reading getting exercise as you are allowed and then if needed see your regular doctor when things are better

your family history is iffy. I am sorry about your brother AD at 80 is probably really AD which isn’t associated with FALS. I guess you are going by the maybe FTD comment. FTD can be but it doesn’t sound like your dad had a real diagnosis. Was the comment made by a neurologist with a PD specialty? There is dementia associated with PD that can be very severe

 

[micky999]

hi thanks for the reply well no my father wasnt actually diagnosed by a neuro surgeon but the specialist who did suggest fronto temporal dementia did it based on his behavior at the care home also as i said i has just been the fascillations sporadic and a trembling feeling in the leg and arm on one side (left) i have just been out walking now for an hour probably only a mile but the leg gives me a inckling that it could buckle just feels a bit shaky although not dragging like my brothers used to as he had a few falls ....i must admit its only really come to my notice in the last week but all these things start somewhere its a feeling ive not experienced before i think thats why it may have rattled me a bit with what happened to the brother i may see if i can speak to my GP as they are still operating fairly normal apart from vaccinations ..like you said i will monitor it and carry on as normal ...thanks mike