Katherine777
New member
- Joined
- Jan 23, 2020
- Messages
- 6
- Reason
- Other
- Diagnosis
- 00/0000
- Country
- UK
- State
- NY
- City
- Norwich
Hello there, I am new to this forum. I have been diagnosed with something called ganglionopathy by a neurologist. This was about 7 years ago. It causes pain all over the body due to damage to the small nerve fibres.
I am wondering if you could help at all. I have had issues with swallowing since February last year. It appears to be with both solid and liquids. I had a swallow bedside test where she checked all my cranial nerves and watched me eat and drink but this was all normal. The nurse did not feel that I needed the video swallow.
I have also had issues with speech for the past 5 years. I have had numbness in my throat and tongue and a load of weird stuff going on. I saw my neurologist yesterday who says he doesn't feel the swallowing issue is related to the ganglionopathy I have , he did mention ALS, but said my speech seemed OK.
I am having an endoscopy and he will arrange a video swallow. I explained to him that I thought it was very coincidental I had issue with my throat like ice cold pain for many years, burning tongue that this wasn't somehow related. The reason I am writing to see if you think this fits with any symptoms with bulber ALS, I don't really know why he mentioned it for but it has scared me. Thank you , regards,
I am wondering if you could help at all. I have had issues with swallowing since February last year. It appears to be with both solid and liquids. I had a swallow bedside test where she checked all my cranial nerves and watched me eat and drink but this was all normal. The nurse did not feel that I needed the video swallow.
I have also had issues with speech for the past 5 years. I have had numbness in my throat and tongue and a load of weird stuff going on. I saw my neurologist yesterday who says he doesn't feel the swallowing issue is related to the ganglionopathy I have , he did mention ALS, but said my speech seemed OK.
I am having an endoscopy and he will arrange a video swallow. I explained to him that I thought it was very coincidental I had issue with my throat like ice cold pain for many years, burning tongue that this wasn't somehow related. The reason I am writing to see if you think this fits with any symptoms with bulber ALS, I don't really know why he mentioned it for but it has scared me. Thank you , regards,
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