Please Forgive me Bestfriends14 and all, I am very clear on what BF14 and I said in previous post.
I respect what BF14 was saying. Sincerely, I truly do. And I understand and heartedly appreciate the effort you provide to us and you are Incredibly giving.
I do not take it for granted for one moment that is why I hesitated for days to post this not to bother.
I’m sorry to post, However, this is new factual information (not anxiety) about 3rd NCS/EMG on Nov 3 with General Neuro (Neuro #3) I received and I was wondering if some on the forum would possibly think providing insight or opinions may be helpful for me or questions I should ask.
General Neuro (Neuro #3) is very curt and uncommunicative on findings.
Of course, I will address these in my upcoming Follow up with NM1 doctor Apt now scheduled for Dec 1.
*** Please read no further if you feel I should simply take it up with my NM1 doctor *** I sincerely don’t want to take up time unduly***
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As my dysphagia progressively worsens by the month, I am Just trying to understand these Neuro #3 findings.
I received from a friendly admin a verbal summary (they are backlogged for sending digital copies at this hospital) of my 3rd NCS/EMG (Nov 3) with this regular Neuro doctor. (Neuro 3)
this hospitals reports Seem very basic I was told.
NM 1 (Different Hospital) with whom my follow up apt is now Dec 1 found the verbal findings I shared with Her “curious” despite the report’s final conclusion of BFS (NM 1 will receive urgent copy Nov 30)
Regular Neuro 3 report said:Nov 3
1- patient shows hyperreflexia. The report apparently didn’t say where or if bilateral. No other details. I just vaguely recall her testing several different areas. It appears like somewhat more generalized Hyperreflexia the way it was worded. Please note that my clinical assessments reports with NM1 and NM2 (Same hospital) on Aug 19 and Oct 7 respectively were very detailed and reflexes normal at 2 + in both instances.
2- Neuro 3 : tibia anterior left: some recruitment. Please note that NM2 EMG of same muscle On Oct 7, less than a month before, found no recruitment issues
3- Neuro 3 clinical exam made no mention of dysphagia Dx that is worsening considerably by the month despite me mentioning it, despite her own OT noticing weakness on right side of throat and despite GI and ENT scopes negative. (thin liquids, managing saliva, mucous, very Very forceful clearing throat and coughing after eating and almost throughout day, jaw twitching At times esp at night).
4- Neuro 3: NCS normal. Please note initial NCS with NM1 found H reflex latency of right soleus muscle was quicker than expected (2-3 ms). Moreover, RNS with NM2 showed decrement of digit 3 in left hand under 10 percent, So Deemed insignificant (Although knuckles Of digit 3 in both hands started hurting a few weeks prior)
5- Neuro 3: no fascs, no mups. etc.
6- DX: BFS (although from my understanding true dysphagia is not associated with BFS. The question was ignored when i asked.)
any insight or clarity on any of this would be appreciated only if possibly please. I know you cannot Dx me but you would have a better overall sense then I do.
Lastly, I wrote to my NM1 for Dec 1 follow up that taken as a whole dysphagia, h reflex missed latency, decrement (and coincidental soreness) , New Hyperreflexia and some recruitment, taken together, did not seem to fit BFS. Please correct me if you believe I’m mistaken.
believe me please, I’m not trying to chase a Al Dx, but I believe things should add up. These issues together don’t point to BFS. And if not BFS and not AL what is the differential diagnosis I will ask.
thank you very much as always And sorry to bother.
AJ