Txu4urtime
Member
- Joined
- Nov 13, 2020
- Messages
- 27
- Reason
- Learn about ALS
- Diagnosis
- 00/0000
- Country
- CA
- State
- QC
- City
- Montreal
Thank you Nikki for your well wishes. Very kind of you
You are a pillar of this forum
and a soothing guide to countless strangers who owe you tremendous gratitude, as do I.
it’s funny, you read my mind. I was hoping you’d address the recent RNS decrement research on ALS. And you did! Thank you for that.
It’s that very body of RNS decrement research findings on ALS , coupled with my own RNS decrement, progressive and highly noticeable dysphagia and new found recruitment that wasn’t there a month ago, that frankly have me- I won’t lie - unnerved to say the least.
Especially that I have a loving and amazing 7 year son and we are inseparable. He is my world. We are each other’s worlds.
You aptly, as always and eloquently ,point out that RNS is not a diagnostic tool for ALS.
However, when I read the the ncbi nih and other reputable sources say “ Conclusions: Decremental responses in the RNS are commonly observed in ALS patients.”, again I won’t lie, I’m unnerved.
I do want to be honest about my fears given what appears to be a fair number of curious indicators.
I will take your well Wishes with me Tuesday Nikki. Thank you again for your clarification.
Message you 12/1 and I’ll send unnamed report And summary when ready and I thank you again in advance for that.
until then ...
AJ
You are a pillar of this forum
and a soothing guide to countless strangers who owe you tremendous gratitude, as do I.
it’s funny, you read my mind. I was hoping you’d address the recent RNS decrement research on ALS. And you did! Thank you for that.
It’s that very body of RNS decrement research findings on ALS , coupled with my own RNS decrement, progressive and highly noticeable dysphagia and new found recruitment that wasn’t there a month ago, that frankly have me- I won’t lie - unnerved to say the least.
Especially that I have a loving and amazing 7 year son and we are inseparable. He is my world. We are each other’s worlds.
You aptly, as always and eloquently ,point out that RNS is not a diagnostic tool for ALS.
However, when I read the the ncbi nih and other reputable sources say “ Conclusions: Decremental responses in the RNS are commonly observed in ALS patients.”, again I won’t lie, I’m unnerved.
I do want to be honest about my fears given what appears to be a fair number of curious indicators.
I will take your well Wishes with me Tuesday Nikki. Thank you again for your clarification.
Message you 12/1 and I’ll send unnamed report And summary when ready and I thank you again in advance for that.
until then ...
AJ