Concernfarther1
New member
- Joined
- Apr 23, 2022
- Messages
- 9
- Reason
- Learn about ALS
- Diagnosis
- 00/0000
- Country
- US
Could this be bulbar als?
Hey everyone- i wanted to hear opinions of if you think they can be bulbar als. This all started last Feb, i started noticing my words were jumbling, mumbling and people would say what a lot to me. I have some balance issues and dizziness that has been around for years. The dizziness . I’m now 38yr old male. I went to neurologist last March who ran tons of test. MRI’s, ssep, blood work and emg/ncv. Mri showed cerivical spondolytic myelopathy and stenosis in neck. The emg was normal no issues at all. He put the needle under chin, back of neck, both arms and legs. Ncv showed carpal tunnel. He said i don’t have als and need to calm down a little. I have a lot of anxiety. It’s not Oct and I’m still having the speech issues that haven’t really left. A lot of my close family friends say they don’t have nothing, but most people that don’t speak to me each day ask me to repeat. My question is , for bulbar als can i still have with a normal emg like i said back in April? Was it down to early? I spoke to neuro recently he did follow up and said I’m fine. He said he would do another emg in Nov to calm me down but it wasn’t necessary. I’m scared w reading from so many people that bulbar als they received diagnosis after having 1-2 normal emgs. Please help. Should i move on to something else since he said i don’t have and emg was normal? I’m hoping Nov emg is normal so i can than say two normal and move on. I should add it’s not all the time i speak but happens a lot that i think. Thank you .
Hey everyone- i wanted to hear opinions of if you think they can be bulbar als. This all started last Feb, i started noticing my words were jumbling, mumbling and people would say what a lot to me. I have some balance issues and dizziness that has been around for years. The dizziness . I’m now 38yr old male. I went to neurologist last March who ran tons of test. MRI’s, ssep, blood work and emg/ncv. Mri showed cerivical spondolytic myelopathy and stenosis in neck. The emg was normal no issues at all. He put the needle under chin, back of neck, both arms and legs. Ncv showed carpal tunnel. He said i don’t have als and need to calm down a little. I have a lot of anxiety. It’s not Oct and I’m still having the speech issues that haven’t really left. A lot of my close family friends say they don’t have nothing, but most people that don’t speak to me each day ask me to repeat. My question is , for bulbar als can i still have with a normal emg like i said back in April? Was it down to early? I spoke to neuro recently he did follow up and said I’m fine. He said he would do another emg in Nov to calm me down but it wasn’t necessary. I’m scared w reading from so many people that bulbar als they received diagnosis after having 1-2 normal emgs. Please help. Should i move on to something else since he said i don’t have and emg was normal? I’m hoping Nov emg is normal so i can than say two normal and move on. I should add it’s not all the time i speak but happens a lot that i think. Thank you .
