canadianbuddy
New member
- Joined
- Aug 22, 2020
- Messages
- 3
- Reason
- Learn about ALS
- Diagnosis
- 00/0000
- Country
- CA
- State
- ON
- City
- Windsor
Hi everyone my symptoms started 5 months ago when I had a massive headache that lasted about sent my body into shock. My entire left side had a constant tingling sensation followed twitching that went up and down the left side of my body. From then on i started to develop weakness followed by fasciculations in my left side. I saw a neurologist in September who had performed an EMG and diagnosed me with benign fasciculations as nothing was found. My symptoms continued as my right leg started to also feel weak and develop fasciculations as well as my arm. I saw another neurologist in early October who specializes in ALS at a university hospital who performed an EMG on my entire left side (from foot to shoulder to neck to spine) and nothing was found and gave me the same diagnosis, the only thing noted was brisk reflexes in lower legs.
Since then my symptoms have continued to progress. I then decided to go to the US to get another emg done this time on my right side and the report is attached. I have weakness throughout my body, I twitch everywhere except my right pectoral and my breathing is now affected also my stomach is sore. I also forgot to mention overtime my left toes are not as responsive as they once were, I have to squeeze very hard to get them to contract. If I lightly bend my toes only my big toe and the one directly to the left move. My balance has become very poor, my forearms get sore after very little movement and hands shake uncontrollably when holding light objects like my phone, my teeth have begun chattering uncontrollably. I also forgot to mention if my left foot bears any pressure I develop this pulsating tingling sensation and sometimes both my feet under pressure feel as if they are vibrating. The only things I have not really experienced so far are muscle failure (clinical weakness), cramps, falls, and stiffness. I have had brain MRI and that was clean, I have had some blood work done and nothing was found.
I just don't understand, I asked the neurologist specifically to check my foot and toes that were not very responsive and nothing. Every emg I have shows no abnormalities, not a single one. Now the only places I have not had an emg on are my chest and my stomach and the right side of my back. I guess I'm just looking for hope, I fear I am one of those special cases who later have a diagnosis.
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Since then my symptoms have continued to progress. I then decided to go to the US to get another emg done this time on my right side and the report is attached. I have weakness throughout my body, I twitch everywhere except my right pectoral and my breathing is now affected also my stomach is sore. I also forgot to mention overtime my left toes are not as responsive as they once were, I have to squeeze very hard to get them to contract. If I lightly bend my toes only my big toe and the one directly to the left move. My balance has become very poor, my forearms get sore after very little movement and hands shake uncontrollably when holding light objects like my phone, my teeth have begun chattering uncontrollably. I also forgot to mention if my left foot bears any pressure I develop this pulsating tingling sensation and sometimes both my feet under pressure feel as if they are vibrating. The only things I have not really experienced so far are muscle failure (clinical weakness), cramps, falls, and stiffness. I have had brain MRI and that was clean, I have had some blood work done and nothing was found.
I just don't understand, I asked the neurologist specifically to check my foot and toes that were not very responsive and nothing. Every emg I have shows no abnormalities, not a single one. Now the only places I have not had an emg on are my chest and my stomach and the right side of my back. I guess I'm just looking for hope, I fear I am one of those special cases who later have a diagnosis.