Alpxx11
New member
- Joined
- May 31, 2023
- Messages
- 2
- Reason
- Learn about ALS
- Diagnosis
- 00/0000
- Country
- UK
Hi All
Just wanted some advice as I’m going mad here!
30, female, desk job as I wfh, gym go-er 2/4 x times per week, pretty active, 10k steps most days, under active thyroid for the last 7-8 years (hypothyroidism).
I did have a blip in December 22 & January 23 where my hypo went to hyper thyroid due to non compliance of medication. Since then I’m back on a correct dosage and the thyroid levels are coming in around range. I’m on levothyroxine.
In January I started to experience mild twitching in my legs which has since spread all body including my arms, face, behind my ears, lips & legs continued. I did put it down to my non compliance of medication but symptoms have since processed or worsened with the twitching.
The twitching isn’t all day & not localised, it’s as hoc. I would say a couple times an hour max approx 5-6. I can feel the internal vibrations more so when relaxed.
I did go to the doctor in March 23 and he said it could be a folic deficiency. Blood works suggest I’m in range.
Further symptoms:
Hands feels occasionally weak and numb (potential carpal tunnel like system due to my desk job which requires me to use mouse a lot)
Full body twitching continued as mentioned above.
Left ankle gives way for a week or so after walking circa 20 mins. Could usually walk an hour + with no issues as I go gym often. I can still walk well with no weakness but ankle just pains/aches after 20 mins.
Right leg calf muscle feels tense with no injury. Almost very stiff but no muscle loss.
I can still walk balanced and coordinated. No gait issues. No loss of strength or muscle loss based on appearance in the last 6m.
Occasional prickling feeling/sensation across arms & legs. Almost like paresthesia.
Can anyone help advise if they suspect this is related to ALS?
I have made an app with my GP but it isn’t for another 3 weeks. Any advice would be much appreciated as I’m losing my mind.
Just wanted some advice as I’m going mad here!
30, female, desk job as I wfh, gym go-er 2/4 x times per week, pretty active, 10k steps most days, under active thyroid for the last 7-8 years (hypothyroidism).
I did have a blip in December 22 & January 23 where my hypo went to hyper thyroid due to non compliance of medication. Since then I’m back on a correct dosage and the thyroid levels are coming in around range. I’m on levothyroxine.
In January I started to experience mild twitching in my legs which has since spread all body including my arms, face, behind my ears, lips & legs continued. I did put it down to my non compliance of medication but symptoms have since processed or worsened with the twitching.
The twitching isn’t all day & not localised, it’s as hoc. I would say a couple times an hour max approx 5-6. I can feel the internal vibrations more so when relaxed.
I did go to the doctor in March 23 and he said it could be a folic deficiency. Blood works suggest I’m in range.
Further symptoms:
Hands feels occasionally weak and numb (potential carpal tunnel like system due to my desk job which requires me to use mouse a lot)
Full body twitching continued as mentioned above.
Left ankle gives way for a week or so after walking circa 20 mins. Could usually walk an hour + with no issues as I go gym often. I can still walk well with no weakness but ankle just pains/aches after 20 mins.
Right leg calf muscle feels tense with no injury. Almost very stiff but no muscle loss.
I can still walk balanced and coordinated. No gait issues. No loss of strength or muscle loss based on appearance in the last 6m.
Occasional prickling feeling/sensation across arms & legs. Almost like paresthesia.
Can anyone help advise if they suspect this is related to ALS?
I have made an app with my GP but it isn’t for another 3 weeks. Any advice would be much appreciated as I’m losing my mind.