Mamabear1792
Member
- Joined
- Jun 29, 2022
- Messages
- 14
- Reason
- Learn about ALS
- Diagnosis
- 00/0000
- Country
- US
- State
- MO
- City
- Saint Louis
I have posted few times before. Sorry for posting again. I have muscle weakness, twitching, muscle atrophy, bad breathing problems. And I have new symptom that feels like my muscles. Are been paralyzed. They are extremely weak very weird weakness feeling. Can barely move them I know longer have active life. I can’t take bath without help are do anything with my three young children. Cause my weakness and breathing is that bad. I recently had EMG on my arm and leg. Back in December that was normal but I here others have fully body ones like on spinal muscles and diaphragm and other places. So I’m not sure what to think I recently failed my PFT breathing tests. And my diaphragm is elevated. My pulmonologist wants to do sniff test to see how well the diaphragm is working. My muscles are extremely weak fatigue very difficult just typing this up. I have seen ALS doctor who pretty much dismissed it all so continue with my regular neurologist. Who seems very concerned I believe it’s definitely ALS just getting gaslit malpractice. What you all think? Sorry for long post thanks and GOD bless all ?
*previous threads here, here and here)
*previous threads here, here and here)
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