Jordancali
New member
- Joined
- Feb 25, 2023
- Messages
- 1
- Reason
- Learn about ALS
- Diagnosis
- 00/0000
- Country
- CA
- State
- ON
- City
- Toronto
Hi everyone,
First I want to say thank you so much for everything that you do. I think it’s amazing that you have this thread for people like me.
I have been dealing with symptoms. I am getting an MRI next week, followed by a neuro exam. I am hoping to explain my symptoms and get some feedback. These symptoms have been happening for anywhere from 4-9 weeks.
I am really just looking for some opinions on my symptoms with regards to ALS. I know some are more in line with ALS and others aren’t. I promise to respect your opinions and will not argue, although I might have some follow up questions. If you have any suggestions for specific questions I should ask my doctor please let me know!
Again, thanks for all you do.
First I want to say thank you so much for everything that you do. I think it’s amazing that you have this thread for people like me.
I have been dealing with symptoms. I am getting an MRI next week, followed by a neuro exam. I am hoping to explain my symptoms and get some feedback. These symptoms have been happening for anywhere from 4-9 weeks.
- muscle atrophy / weight loss. I recently noticed I’ve lost about 16 lbs over the last 4 months (which is quite scary) and a lot of that seems to be muscle. My left bicep looks and measures smaller than my right, though right now my legs are very similar. I do not feel weakness, which is odd - I’m continuing to do similar workouts and runs to what I was doing 6 months ago, however I do find my left shoulder is weaker than my right. Yesterday I attempted a shoulder workout and today my left shoulder is significantly more sore than the right. I should mention I seem to be able to flex most muscles. However, again, all my muscles are noticeably smaller than they were 4-6 months ago. In ALS a would weight / muscle loss occur this quickly?
- Twitching: I have muscle twitching that has been ongoing for about a month. It occurs in various places in the body (from the shoulder to the back to the hip to the thighs to the calves) typically only a few twitches before it moves to a new location. The first twitch I noticed did occur in the left shoulder, which is where I would say I am feeling the most weakness right now.
- Vision: floaters and flashes. I have had floaters for a while, but they have increased in prevalence. I have recently added flashes of light to my vision repertoire (an eye doctor says my eyes look good)
- Cognitive difficulties: memory problems, general fog
- Clumsiness: dropping things occasionally, having a harder time performing some tasks (like scrolling on my phone with one hand)
- Sloughing of my cheeks each morning (skin inside cheek coming off - saw a dentist, he says no signs of why this would be happening as my mouth looks good). Also have general soreness under tongue.
- Change in vaginal discharge - more watery? Less overall discharge.
I am really just looking for some opinions on my symptoms with regards to ALS. I know some are more in line with ALS and others aren’t. I promise to respect your opinions and will not argue, although I might have some follow up questions. If you have any suggestions for specific questions I should ask my doctor please let me know!
Again, thanks for all you do.