godblessyouall
New member
- Joined
- Jan 22, 2023
- Messages
- 4
- Reason
- Learn about ALS
- Diagnosis
- 00/0000
- Country
- UK
Hello, everyone, first of all I wanna say that all my prayers go to the people diagnosed with ALS and their family members and friends and want to thank everyone in this forum taking their time reassuring and answering questions to undiagnosed and anxious people regardless of the pain and struggles they feel!!
Obviously I am one of the anxious people also worrying about having ALS and would like to ask the people who had experience with the disease if any of my symptoms sound like ALS.
I am 25 years old male, was highly active individual - fitness, running, martial arts until I had an injury - golfer's elbow a year ago from which I am still recovering and not able to work out due to the pain in the tendon. My symptoms and fears of ALS started in November 2022 with sudden stiffness and cracking in my jaw, stiffness and burning pain in my calves/legs, cracking joints almost everywhere, random pains, urinary hesitancy, balance issues and dizzines, muscles getting fatigued quickly, vision problems and brain fog. Some of the symptoms got better, others stayed. Beginning of January this year I started having twitches all over my body after a respiratory infection with a fever. Since then everything seems to worsen - pain and burning pain everywhere - wrist popping and pain, forearm pain just from holding a phone but I want to mention that the pain had not caused any weakness at all only muscles getting easily fatigued.All bloods I have done came normal only borderline low B12. I visited a neuro on 4th January, he made an NCS and told me EMG was not needed. NCS results were slightly reduced NCV in L5/S1 and big reduction in sensory nerves. He ordered an MRI spinal and brain which came normal only with sinusitis. Prescribed some medications but symptoms still sticking until now so would like to ask does any of these sound to you as ALS and should I schedule another appointment with a neurologist for an EMG or better contact a rheumatologist or may be do a Lyme disease blood test ?
Thanks in advance and God bless you all!
Obviously I am one of the anxious people also worrying about having ALS and would like to ask the people who had experience with the disease if any of my symptoms sound like ALS.
I am 25 years old male, was highly active individual - fitness, running, martial arts until I had an injury - golfer's elbow a year ago from which I am still recovering and not able to work out due to the pain in the tendon. My symptoms and fears of ALS started in November 2022 with sudden stiffness and cracking in my jaw, stiffness and burning pain in my calves/legs, cracking joints almost everywhere, random pains, urinary hesitancy, balance issues and dizzines, muscles getting fatigued quickly, vision problems and brain fog. Some of the symptoms got better, others stayed. Beginning of January this year I started having twitches all over my body after a respiratory infection with a fever. Since then everything seems to worsen - pain and burning pain everywhere - wrist popping and pain, forearm pain just from holding a phone but I want to mention that the pain had not caused any weakness at all only muscles getting easily fatigued.All bloods I have done came normal only borderline low B12. I visited a neuro on 4th January, he made an NCS and told me EMG was not needed. NCS results were slightly reduced NCV in L5/S1 and big reduction in sensory nerves. He ordered an MRI spinal and brain which came normal only with sinusitis. Prescribed some medications but symptoms still sticking until now so would like to ask does any of these sound to you as ALS and should I schedule another appointment with a neurologist for an EMG or better contact a rheumatologist or may be do a Lyme disease blood test ?
Thanks in advance and God bless you all!