toklcz
New member
- Joined
- Dec 12, 2022
- Messages
- 5
- Reason
- Learn about ALS
- Diagnosis
- 00/0000
- Country
- CZ
Hi, I am 21 years old and the last few months have been the worst of my life and I would like to hear your opinion on my situation, whether my fears are justified or I am stressing myself unnecessarily.
On 30.8.2022 I started to feel dizzy, this dizziness continued for the next 14 days when it appeared mainly in the morning. Neurology found that I had a prevalence of reflexes on the right side of my body and reduced ventral reflexes in my right hypogastrium. Further, a 6-7/8 tuning fork palpesthesia was found on the right leg, the strength was symmetrical on both upper and lower extremities. Pyramidal signs both spastic and irritative were negative .On the basis of this examination I was sent for MRI on 16.9 due to suspicion of MS. Between 13.9 and 16.9 I had blood tests, ECG holter and carotid ultrasound. The results of these tests were normal.
The results of the MRI were negative, but the doctor still recommended a lumbar puncture whereupon we decided that I would see another neurologist on 10/1/2023 to give his opinion on whether a lumbar puncture was necessary. Since then, in early October I looked into the reason for the hyperreflexia on one side of my body and was diagnosed with ALS disease, since then I have been experiencing three months of twitching muscles variously around my body, calves, thighs, flat of my feet, back, arms but mainly on the right side of my body. Also, since the summer I have been suffering from occasional twitching of the fingers on my left hand, especially the index finger which twitches all over. Of course I have linked this to the fasciculations in ALS. I also get occasional finger weakness on my left upper extremity that is sometimes absent or unnoticed.
From then until now I search the internet almost daily for anything to do with ALS, three weeks ago I was forced to go to a psychiatrist where I was given antidepressants. I didn't mention to the neurology doctor about the low back pain on my right side when bending over after an injury. I also occasionally have tingling or tingling in my lower extremities which I have to break up. Since this examination I have lost 8 pounds because I am eating less due to impaired swallowing and also have an increased vomiting reflex, but this all came about after I started dealing with this disease. I find I am congested and have an occasional hoarseness in my voice but no one has told me I speak differently or that I sound drunk.
My concern is actually that my illness was discovered by accident because I didn't go to the doctor with any of these problems. Everybody i told my problems told me that I was examined by neurologist and if she had some suspicions she would not just say "I would do lumbar tap to be sure about MS" and would examine me more.
I know that sensory symptoms are not common in ALS and at my age of 21 this disease is not that much of a threat but I can't shake this feeling.
On 30.8.2022 I started to feel dizzy, this dizziness continued for the next 14 days when it appeared mainly in the morning. Neurology found that I had a prevalence of reflexes on the right side of my body and reduced ventral reflexes in my right hypogastrium. Further, a 6-7/8 tuning fork palpesthesia was found on the right leg, the strength was symmetrical on both upper and lower extremities. Pyramidal signs both spastic and irritative were negative .On the basis of this examination I was sent for MRI on 16.9 due to suspicion of MS. Between 13.9 and 16.9 I had blood tests, ECG holter and carotid ultrasound. The results of these tests were normal.
The results of the MRI were negative, but the doctor still recommended a lumbar puncture whereupon we decided that I would see another neurologist on 10/1/2023 to give his opinion on whether a lumbar puncture was necessary. Since then, in early October I looked into the reason for the hyperreflexia on one side of my body and was diagnosed with ALS disease, since then I have been experiencing three months of twitching muscles variously around my body, calves, thighs, flat of my feet, back, arms but mainly on the right side of my body. Also, since the summer I have been suffering from occasional twitching of the fingers on my left hand, especially the index finger which twitches all over. Of course I have linked this to the fasciculations in ALS. I also get occasional finger weakness on my left upper extremity that is sometimes absent or unnoticed.
From then until now I search the internet almost daily for anything to do with ALS, three weeks ago I was forced to go to a psychiatrist where I was given antidepressants. I didn't mention to the neurology doctor about the low back pain on my right side when bending over after an injury. I also occasionally have tingling or tingling in my lower extremities which I have to break up. Since this examination I have lost 8 pounds because I am eating less due to impaired swallowing and also have an increased vomiting reflex, but this all came about after I started dealing with this disease. I find I am congested and have an occasional hoarseness in my voice but no one has told me I speak differently or that I sound drunk.
My concern is actually that my illness was discovered by accident because I didn't go to the doctor with any of these problems. Everybody i told my problems told me that I was examined by neurologist and if she had some suspicions she would not just say "I would do lumbar tap to be sure about MS" and would examine me more.
I know that sensory symptoms are not common in ALS and at my age of 21 this disease is not that much of a threat but I can't shake this feeling.
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