Nikki J
Moderator
- Joined
- Mar 22, 2012
- Messages
- 16,461
- Reason
- PALS
- Diagnosis
- 04/2014
- Country
- US
- State
- MA
- City
- Boston
If your doctor saw all that then they surely have a plan to pursue this. You can probably get an idea from the aftercare summary because that will list the tests ordered even if the full note isn’t on the portal yet. Did they order a ganglioside antibody panel ( might also be called Washington University neuromuscular panel)? Other antibody test?
lack of atrophy doesn’t rule out ALS though and having it does not diagnose ALS. the doctor may well have a hunch about what this is and is pursuing that. If he suspected ALS it would be easy enough to order an emg and refer you to the als clinic. I encourage you to read his note when it shows up on the portal. It may help you understand his plan
lack of atrophy doesn’t rule out ALS though and having it does not diagnose ALS. the doctor may well have a hunch about what this is and is pursuing that. If he suspected ALS it would be easy enough to order an emg and refer you to the als clinic. I encourage you to read his note when it shows up on the portal. It may help you understand his plan