Gnanam
New member
- Joined
- Jul 1, 2021
- Messages
- 7
- Reason
- DX MND
- Diagnosis
- 02/2021
- Country
- IN
- State
- TA
- City
- Krishnagiri
Dear niki am in India.please help me. Last feb i felt something not good in my body and felt very discomfort and am not able to walk long disease. Then feb end I noticed sleeping problems. Then I took sleep study that results I have sleep apnea and got bipap now itself but sleep not fully satisfied. Than dr suggest pft lung volume is little low. Then I felt muscle weakness and weight loss near 5 kg. Then I felt muscle twiching in wole body. Then I visit neuro emg and ncs and blood sample all are normal. Now I regain weight about 4 kg because I took rich protein. But muscle twitching is gradually increased. Than last month to took another emg that shows active Denervation in cervical Myotomes. Other area normal. Now I had small atrophy in feet. Dr told possible als. Now what to do dear. Am very helpless hear. Still now am walking my grip is good. Symptoms now 10 months. There is any possible als pls reply me