Could this be als

Mt7

New member
Joined
Jul 29, 2020
Messages
4
Reason
Learn about ALS
Diagnosis
00/0000
Country
UK
State
LV
City
Liverpool
Hi been 4/5 months now
Started with tremors slow and extreme fatigue
Moved on to muscle twitches random all over
Head feel like it’s heavey neck muscles seem extremely weak
Feel of balance wen walking and tired but have strength as normal
Mouth fatigue wen eating jaw neck and head get so tierd and weak tounge still moves fine
No slurred speech
Symptoms come and go but seem like there progressing wen they come back
Been doctors to many times think he’s sick of me calling him but it just feels so strange like nothing I’ve felt before
I’m worried over bulbar onset
Would the symptoms be there all the time and get worse or can they come go An progress over time (sorry to bother everyone just after some info thanks so much )
 

Mt7

New member
Joined
Jul 29, 2020
Messages
4
Reason
Learn about ALS
Diagnosis
00/0000
Country
UK
State
LV
City
Liverpool
Also crazy head pain and the muscles in mouth r to weak to even be botherd to talk lately
Some shortness of breath sometimes also
Had full bloods thyroids all fine 🤷‍♂️
 

lgelb

Forum Supporter
Moderator
Joined
Nov 5, 2009
Messages
8,460
Reason
Lost a loved one
Diagnosis
00/0000
Country
US
State
WA
City
Seattle
Sorry for your troubles. Doesn't sound like anything resembling MND, where no, symptoms do not come and go. I presume lung and heart problems have been checked for. Perhaps your GP could refer you to an infectious disease specialist to rule out an infection of some kind.

Best,
Laurie
 

Mt7

New member
Joined
Jul 29, 2020
Messages
4
Reason
Learn about ALS
Diagnosis
00/0000
Country
UK
State
LV
City
Liverpool
Thank u so much for ur reply and time
The fatigue came out of nowhere
Wen I train in gym it gives me a unsteady off balance type feeling
Then my mind goes into over drive I have the tape measure constantly measuring one side to the other
Then loose control of my mind I dnt drink alchol but I can say I haven’t stopped drinking for 3 months now to try an forget about it major worries is neck mouth and head and slight pain all right side of body cramping lately but put that down to alchol and coffee
Thanks for reply I really do appreciate it
 

lgelb

Forum Supporter
Moderator
Joined
Nov 5, 2009
Messages
8,460
Reason
Lost a loved one
Diagnosis
00/0000
Country
US
State
WA
City
Seattle
Well, continuous drinking won't help your coordination, balance or stamina. So if you can't get your mind out of overdrive, counseling could be your next stop.
 

Mt7

New member
Joined
Jul 29, 2020
Messages
4
Reason
Learn about ALS
Diagnosis
00/0000
Country
UK
State
LV
City
Liverpool
I am trying counselling in next few weeks really hope it helps hands arms permanent shaking now aswell like a tremor have 2/3 good days then 2/3 bad days it’s like clock work strange but getting use to it now think yoga might help with the cramping I’m not sure thanks again for ur reply it does help a lot to speak to someone
 
Top