Could this be ALS? 3 videos inside. 27 years. Without exaggeration

Status
Not open for further replies.

LanceSpain

New member
Joined
Jul 5, 2020
Messages
4
Reason
Learn about ALS
Diagnosis
00/0000
Country
US
State
NY
City
Spain
Hi, I'm a 27 year old boy from Spain. A month and 5 days ago I started noticing fasciculations all over my body.

Previously I had spent 5 months studying hard for a law degree, and I was sitting more than 10 hours a day. I had a lot of back and chest pain, but I couldn't go to the doctor for the coronavirus.

On June 1 I noticed the first fasciculations. They hit me on the right side of the body, where I had the (backage)/pain months ago. Then they moved on to the biceps, lasted for hours, and it was removed from there, but they went elsewhere. From there they became generalized. On June 10 I had them in the plantar arch (in addition to the whole body) intensely, and two days later in the left buttock. It also lasted for hours. And, meanwhile, in all the body. (Fasciculations could pass from the shoulder to the calf in seconds. The rhythm of the fasciculations has been during June of a random fasciculation per minute, now I have much less).

Since then, I have noticed that the fasciculations have decreased both in number and intensity. I have been giving me only small movements for three days, also all over my body.

I got to have them in feet, calves, abdomen, neck, temporal muscle above the ears, shoulders, arms and forearms, etc.

I attach the 3 videos that I have uploaded to YouTube so that you can guide me. Four days ago I went to the doctor, and at the end of this July a neurologist will see me. Meanwhile, although I have much less and less intense, I would like to know some opinion that you have the most experienced.

I am not anxious, but I was stressed for many months by law school, from January to June 20. Since then I have been having less fasciculations.

Now I just feel a little tired in my left arm, for example when I wash my head and have to lift it.

I attach the links and I await your response. Thank you very much from this other continent.

Plantar arch (10 June):
Left biceps (1st June):


Since I finished exams and Law school, they have been decreasing, but today I have fews and my left arm is a little tired (feeling similar to when you lift weights and can't do any more repetitions)
 
Last edited by a moderator:

KarenNWendyn

Moderator
Forum Supporter
Joined
Jul 29, 2017
Messages
3,762
Reason
PALS
Diagnosis
07/2017
Country
US
State
OR
City
Southern Oregon
Please read this if you have not already done so

Fasciculations are common, nonspecific, and meaningless in the absence of muscle function failure which you have not described. It doesn’t matter how much you twitch, where you twitch, speed of twitching, etc, etc.
if you can still do everything you could do previously, then you don’t need to worry about ALS.
 

affected

Guru status reached
Joined
Apr 26, 2013
Messages
12,697
Reason
Lost a loved one
Diagnosis
05/2013
Country
OZ
State
AU
City
lala land
No problems, twitching means nothing you are young and I hope you get help from your doctors.
 

LanceSpain

New member
Joined
Jul 5, 2020
Messages
4
Reason
Learn about ALS
Diagnosis
00/0000
Country
US
State
NY
City
Spain
Thank you very much for your replies. Exactly, I read the post with the pushpin, both of them.

Here in Spain I have read several testimonies in the media in which those affected by ALS sometimes go to the doctor because they notice "palpitations" in the stomach, abdomen, shoulders, neck, among other parts.

This scared me a bit because mine are also in these parts, and I've been quite tired for a few days (really, months).

They will definitely give me an EMG sooner or later. The neurologist will see me in late July.

But I am concerned, because these movements persist to this day and have not gone away after taking anxiolytics after a couple of weeks.

Here in Spain there is a 34 year old guy who is giving much visibility to the disease through his platform "Juntos Venceremos ELA / Together we will win ALS", and in some interviews he comments that he started to feel tired when climbing stairs, he was told some words got stuck, and later he lost the mobility of his index finger.
 

affected

Guru status reached
Joined
Apr 26, 2013
Messages
12,697
Reason
Lost a loved one
Diagnosis
05/2013
Country
OZ
State
AU
City
lala land
Well we know ALS and do not argue against what is written in the pushpin posts. Not at all.
Please go get help for your fears, we can't really do anything more. Let us know your EMG results but seek help elsewhere until then.
 

LanceSpain

New member
Joined
Jul 5, 2020
Messages
4
Reason
Learn about ALS
Diagnosis
00/0000
Country
US
State
NY
City
Spain
Thanks a lot for your answer.

I update to say I'm going to a neurologist next week, because my family is very concerned about me. Here in Spain there's a public medical insurance, "free" but payed by fees. But you last 3 months at least until visiting the doctor's, and may be I would wait 8 months until first EMG.

So, I'm visiting a private doctor next week, and the public doctor at the end of July.

Twitches persist but I have been with anxiolytics (alprazolam) for two weeks.

Only a more (and last) question, because I dont understand a part of the pinned post:

If the private neurologist says he want to take me an EMG, would It be very soon/early as I dont have so much weakness? Should I wait more time?
 

ShiftKicker

Moderator
Joined
Mar 16, 2015
Messages
3,332
Reason
DX UMND/PLS
Diagnosis
06/2015
Country
CA
State
BC
City
Vancouver
What's coming across from your posts is an assumption and deep fear you have ALS and you are looking for a neurologist to confirm this and are worried it's "too soon" to detect or prove. If there are issues, it will be obvious to the examiner and they will conduct the tests necessary to track down the issue. A neurologist's job is to detect even the most subtle of signs there is something wrong and have all sorts of methods to do so.

It might be a better approach to let the neurologist lead this search, as they have the training to detect issues and guide further exploration based on their clinical exam. If you go in to your appointment and insist on them checking for ALS, there is a chance they will spend more time reassuring you and assigning anxiety. It really is important to tell the specialist your physical symptoms without assigning a particular disease and let them guide the search based on their findings without making your appointment about just ruling out ALS.

Please let us know how you appointment goes. Best of luck
 

affected

Guru status reached
Joined
Apr 26, 2013
Messages
12,697
Reason
Lost a loved one
Diagnosis
05/2013
Country
OZ
State
AU
City
lala land
Not too soon, ALS will show if you have it.
I am certain you don't, so if the neurologist doesn't think an EMG needs to be done, please believe him/her.
If an EMG is ordered, it is done to look for hundreds of kinds of issues, it is not an ALS test. So ordering an EMG means nothing.

You can come back after the appointment, but that's really all we can say until you have been examined. All the best, please believe what you are told.
 

LanceSpain

New member
Joined
Jul 5, 2020
Messages
4
Reason
Learn about ALS
Diagnosis
00/0000
Country
US
State
NY
City
Spain
Thank you very much for your responses. I will keep it in mind. I agree with ShiftKicker because precisely for these fasciculations I have been treated a total of three times (between primary care, and an urgent analytical) and at no time have I been asked if I have stress or anxiety, because I have not gone with "fear "but presenting my symptoms.

Another thing that already caused me anxiety occurred this morning in Spanish time. My family doctor called me just to tell me that he had spoken to a colleague and told them that they were very rare, that "he had never seen them like this in his life" (this was told by my doctor and also by the colleague). In addition, it is that they are rare, because those of the gluteus are not "palpitations", but rather more like a "storm" or fibrillation.

I am going to disappear for a few days from the internet, searches and forums until the appointment of the 16th. I will tell you what the neurologist tells me.
 

affected

Guru status reached
Joined
Apr 26, 2013
Messages
12,697
Reason
Lost a loved one
Diagnosis
05/2013
Country
OZ
State
AU
City
lala land
Fibrillations cannot be seen or felt - and, once again, twitching means nothing, zero, zip. No one here is saying you twitch because of anxiety, you just twitch. Lots of people do, and benign means it isn't a disease process. Your doctor may not have seen those twitches, but we've seen them by the thousand here in this forum.

Now, do stay off the internet and live, then tell us the result of your neuro consult. All the very best, you don't have ALS symptoms in any of your descriptions.
 
Status
Not open for further replies.
Top