Could they be missing it?

[Nikki J]

So you need to see a neuromuscular doctor and have another emg. This doesn’t seem like this is an academic medical center? My sister was diagnosed during a hospital stay but she had an emg and neuromuscular specialist ( and it was expected as we are FALS) they did not give the diagnosis until the emg

 

[lgelb]

ALS is a diagnosis of exclusion only after an EMG and exam reveal certain findings that you have not reported. The history that you have mentioned doesn't fit. I continue to believe that whatever your problem is, it's not ALS.

 

[ToeKnee]

Moved to a specialty clinic at Mount Sinai in NYC they don't belive this is ALS judging by the previous emgs and the one I have submitted here you were all correct. They will repeat emg and do genetic testing etc. I will only return to this forum if I receive an ALS diagnosis for now thank you all so much for you time and support ❤️ 🫂.

 

[Nikki J]

Best of luck. when you do get a diagnosis of something it is helpful if you return and post it. Worried people reading threads can then see what happened. I am happy you are at Mt Sinai.

 

[ToeKnee]

Still in early testing stages but results from newest emg study was not diagnostic for anterior horn cell disease. I will return once I have my diagnosis.