Could it be

[melis]

Hello you guys

Thanks for reading and responding..

My problems started around 6 month ago. Muscle fatique in the upper arm/trapezieus muscle that is getting worse by the day.
This was spreading to my lower arm and hands. I notice that my hands will cramp up when i brush my theeth, ore when i do litttle things with my fingers like writing, washing my hair ect. I need to take more breaks that i am used to, with more breaks i mean a lot more. Also writing this message will make my hands/fingers cramp up.

I am at the point that i have trouble holding my arms in front of me, this was a few months ago only when i try to reached above head level.

I have seen a ALS specialist and they have done clinical exam and needle emg. This was in my face, back, legs, and hands.
She told me she didnt think that it was als. And she said to build op my strenght again and look for help for my anxiety about als..
My emg was clean, and she told me also that i did not have any muscle disease because my emg was clean.
This was when i didnt had trouble with my hands and back.

Now i am scared that i am a case that had a clean emg and clean clinical.. and turns out later to be als.
I try to be positive because a expert did the exam and they see people with als at a daily basis.
I read the stickies and i know its about failing.

I am really try to not think about it and do the things that i love to do, buth one day is better than the other day.
My husband told me to go to the doc again when i really have trouble with my shoes ect.

I have also weaker legs as i am used to, i have fasiculations all over my body. Started in my legs, and spread to every part.
Lately i have fasiculations in my arms also and spreading to lowerpart of my arms and fingers.

I know i will get a lot of answers that i have seen a specialist and that i need to move on. Buth i am scared because it is spreading to my hands, and feet and sometimes i think my mouth area also. Buth my arms are worse than the rest.

Could it be something like als, ore is it truly that it is not even a slightly possible change that i could be. Does it sound like it ore not..

I am sorry i wasting your time.

 

[affected]

I can see that you already know the answer, but just couldn't seem to help yourself posting.

This is a sign that you are anxious beyond what is rational. That's a good thing, because it indicates that if you go and talk honestly with your doctor, you can get help.

The more anxious you get about this, the more you are likely to notice more and more little things that seem to be wrong and see it spreading all over your body. This then feeds on your fears and convinces you that something is terribly wrong even though there is no medical evidence of it.

We simply will not argue with an ALS specialist who has examined and tested you. How stupid would that be? Think about it. All we have is your subjective report against clinical exam and gold standard testing.

I truly wish you the best, you can beat this!

 

[melis]

hii affected

Yes i have help already with the anxiety.

Its just such a hard thing, when your body doesnt feel right and its been putt of to anxiety. When you are the one that knows your body.
The dc at the centre told me that i was always welcome, and that i needed to come back when i had trouble doing daily tasks.
Thats the thing.. i already have more trouble doing stuff buth dont want to concentrate to much on it.

Thing like

-- Doing laundry and hanging it in front of me ore above me is getting hard,
-- holding a spoon/fork in front of me for a minute is also to much
-- Brushing theeth is also getting harder because i need a lot of breaks,
-- I can not hold heeavy stuff that long anymore.
-- Me fingers feel stiff al the time..
-- Its in both arms, right worse then left.
-- Just my upper body that shakes when i try to hang laundry ect.
-- My legs that starting to be heavy,

And more

The scariest part of it all is that i feel normal, when i am sitting down ect i dont feel a thing exept for the fasiculations that are getting more brutal at time. And since a few days move my fingers en toes.. And all of this started with just a weird feeling of my right arm would get tired easily.

I will contact my docter when its progresses more than it hass..

I love life to much to be botherd about this,, and i try to stay positive and when i do, i am not so scared .. buth when you start to do things and noticing that something is again more trouble for you., its freakes me out and making me sad. The fasciculations are not my best friend because they pop up on new places and the old places didnt go away at all.. i see a pattern of fasciculation and trouble in that muscle.

Thanks for you respond, i will try my best to keep going the way it is..
And you guys are no doc so i am sorry for that..

 

[Clearwater AL]

Melis, "I will contact my docter when its progresses more than it has."

" i already have more trouble doing stuff." Then your list above.

With all you have written above... why wait?.

Most important now is to get serious help for your Health Anxiety.

 

[melis]

@Clearwater AL, thats true. I had not a fun experience last time and was not taking serieusly and send home because there was no clinical weakness. I am busy with working on my anxiety with psychologist and social worker and will contact my dc for some advice. She knows me very well so thats comforting. And appointments by neurologist will take some time.

 

[ShiftKicker]

Melis-

We can only advise people to keep working with their doctors if they are convinced they have ALS and do not believe prior neurologists or the information here. This small section of the ALS Forums is to provide basic information and advice- which you have already received- but we are not set up for more than that.

It is good you are still in the care of your doctors and are receiving anxiety support while you look for answers. If you are still in need of an online community to communicate with and post about your worries, there are a few who are very good for this- NoMorePanic has a section set up specifically for folks who worry about ALS/MND.

This is not a dismissal of your symptoms or a denial that there is nothing wrong, only that this forum is not the place that can provide you the assistance and support that you need.

Take care

 

[affected]

The thing is that we are not saying that nothing is wrong.
But your anxiety over this is an issue.
Clinical weakness is the ONE hallmark that will head you to a diagnosis of ALS.
All your descriptions are not clinical weakness.

Let's think logically for a moment.
You think you have a serious, untreatable, terminal disease.
But instead of going back to the doctor that invited you to return with concerns. Instead of going to the professional that can see you, test and examine you and the new concerns. Instead of that - you come back here and pour out your fears.

Here, where you were told you could not receive any further help.

That is something that needs to be addressed. No matter what is happening physically, your fear is clouding and obstructing getting it diagnosed properly the longer you post here, instead of working closely with a doctor.

This is why we often close threads - not to dismiss a person. But to encourage them to seek proper medical assistance.
That is what you need to do.

 

[lgelb]

Indeed, I would return to your primary physician as your problems seem more systemic than anything. Closing this thread so you can act on all the good advice you have received.

Best,
Laurie