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Allenda93

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Hello i am a 26 year old male , one morning i woke up and both arms and legs felt weak,

i will back the story up, before that day i worked out 4 times a week, and i work a office job but had a seasonal job 2 weeks* before i the weakness started that i had to stand and run and jump a lot as a entertainer, so i woke up and felt weak in both legs and arms, i thought maybe i just over did it at the gym so the pain didnt go away for a week or so, so i didnt work out, then i dicided to go to the doctor and at first they blamed it on working out and they checked my vitiam levels and my vitamin levels were alittle low(runs in the family) so she prescribed me vitiam d, took that for about 3 to 4 weeks then didnt notice a difference in pain and i woke up another morning and notice my muscle was twitching in my my right ab.

i called the doctors office to see if this was a side effect of the vitiam d and she said no, so i went back there the next week because the twitching started all over my body arms, legs, back, butt, face, neck, she then question me about stress i told her im not really stressed as i have a job i love and a wonderful gf, she wrote me a prescription for anexity meds, well i noticed the pain getting worse and i felt tired alot and pretty much the constant pain areas were in my arms and legs, but i would have pains that come and go in one knee, wrist, evrn my jaw, and* even my hand seems to cramp and fingers randomly hurt especially when i use them, at this point i completely quit working out and still weakness and pain!

So i called the doctor agian 3 months or so when it started and she said well we cant do much here so reffered me to a rhematoligist, well had to wait 3 months, still having pain in same areas, still* muscle twitching all over!, stiff neck lower back pain and random tingling in feet and legs and hands, get minor headaches a few random joint pains and feel tired a lot, like one time i went out with friends a walked alittle bit then normal and the next day i woke up and it felt like 10 pound weights were attached to my feet but lightned up throughout the day.

Finally the day came to go the the specialist [mod note: a rheumatologist], was excited to figure out what was wrong, well by my suprise i got there and littarlly felt rushed she asked me my symptoms* and then had me pull on her arms and stuff then drew blood and urine sample and xrays of my neck and back and said see you in about 2 months , well im about a month away and finally got a email about my results for the test and found nothing* anyone ever have symptoms like these? Could it be?
 
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lgelb

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I don't know where you got ALS out of this, apart from the magical Internet.

You have the right to find out from the rheumatologist what diagnoses if any she is still considering, and I would also ask your primary doctor to explain the test results to you. If things are not working out, you also have the right to find a new medical group.

I don't know if you have anything treatable going on, but on the ground in KC is where you will find out.

Best,
Laurie
 

Allenda93

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Well i did the wrong thing and googled muscle weakness and muscle twitching and the only thing that shows up really is als, its just weird becuase its a constant weakness in my legs and arms then random pains every other day like in my knee, jaw, back etc, just trying to get a better idea what it might be becuase with the blood test it ruled out alot of things and i see alot of post about muscle twitching but mine started when with weakness in both arms and legs then about a month later is when i noticed the twitching, some days i feel alittle better then others but also have weakness and legs and arms and its bugging me my hads cramp up along with tinggling in feet and hands, i apprecaite your reply thank you
 

Allenda93

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Also i well add as another symptom i noticed my palms get sweaty easer and also when i streach my hand it feels like it has a pulse somtimes. Also when the muscle twitching its all over but lets say i feel it in my leg, i can move my leg and ussally the twitching will stop if counties
 

ShiftKicker

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Please direct your health related questions to your doctor. This forum is for folk with ALS and their caregivers. You've had the very fortunate news that you do NOT have ALS, and so need to leave this forum behind.
 

Allenda93

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Sorry just seeing if it could be similar, ive been going to the doctors for over 6 months and they really havent gave me any idea what it could be
 

Allenda93

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Hi all, just an update, my rheumatologist called me and wants me to get some MRI so i am next, also i told her i am experiencing more saliva in my mouth and she said its ussally you have try mouth if it is arthritis related, after that my heart kinda shunk, would all these symptoms happen in a 5 month course im getting worried and havent felt normal for a long time and still feel weak in all my limbs, and my feet have been buring alot latey and sometimes my hands get tingling in them, also with the extra saliva its not helping, any have issuses like these? Thank you all
 

Bestfriends14

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This is an ALS forum for people diagnosed with ALS and their caregivers. Please direct your general health questions to the appropriate place as you do not have ALS.

Take care and good luck to you.
 

Allenda93

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They havent gave me a diagnosist me yet unfortunately and all my symptoms could be ALS related from what i found on the internet
 

Clearwater AL

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This Forum is not the Internet.

This is real. Real members that have ALS or are Caregivers to
loved ones who do.

You've heard from extremely knowledgeable members...
you do not have ALS.

Please don't return until you have an EMG report with the last
page stating a Summary/Conclusion.

If a neurologist would even consider an EMG.
 

Allenda93

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Thought they had it but was somthing else

Anyone thought they had als but ended up being somthing different?? Just wondering
 

ShiftKicker

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Mod note- moved post to already open thread. Allenda- you were asked to return and post after you had seen a doctor and been provided further information about your specific. This forum is not for speculation nor a general medical resource. Those who are experiencing anxiety about their health are actively discouraged from continuing to engage here, as it only serves to increase anxiety.

Please do not post till you have actual results from a doctor. This thread will remain open only for that. Any further speculative posting or symptom updates will result in this thread being closed.
 

affected

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The read before posting sticky has a huge list that answers you.
 

Allenda93

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Hello all, i do have an update, mri came back normal but my blood work did show a high ck protien level which makes me nerves, also i don't feel as if any symtoms went away, she referred me to a Nerologist and now i'm 10x times more worried, and i asked her if she is considering a diagnosis but she said no... i can't find anything that is like the symptoms im having other then ALS and it worries me
 

Clearwater AL

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Allenda,

I seldom chime in on this sub-form. But, there are so many Neurological
Diseases that in the beginning of your/their symptoms and before your/their
first Neuro appointment mimic the onset of ALS.

I read where new members write they have read this Forum for weeks and
some for months before they decided to post. Maybe if they spent the same
amount of time reading of the many Neurological Diseases they just might
notice one that is more to them than ALS.

Instead they go into panic mode, some say they are freaking out, some want
to know about leaving their children behind and they haven’t had an EMG yet.
They have convinced themselves they have ALS even disregarding extremely
knowledgeable members here trying to reassure them… they do not have ALS.

Ok, just for example of early mimics, below is a Neurological Disease not
often heard of but…

(Inclusion Body Myositis (IBM)

Inclusion Body Myositis. Inclusion Body Myositis (IBM) is an inflammatory muscle disease
characterized by progressive muscle weakness and wasting. Patients suffering from IBM
usually develop symptoms of IBM after age 50, HOWEVER some patients may present with
symptoms as early as their 30's.)

I’ve seen that possibility in many DIHALS threads.

So, with the many Neurological Diseases other than ALS there are greater
chances through a Neurological exam (exams) it could very well be
something besides ALS.

Give hope and odds a chance. :)
 
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