Desgueis
New member
- Joined
- Jun 1, 2024
- Messages
- 2
- Reason
- Learn about ALS
- Diagnosis
- 00/0000
- Country
- ES
- State
- CA
- City
- Girona
Hello everyone,
First of all, I would like to thank all of the people that might see this post and take their time to read and respond to it.
Apart from that I've also read the post which indicates all of the things I have to consider before even thinking about posting. There says that the initial symptom of ALS is clinical weakness, which I don't have (at the moment), but I've also heard stories which ALS began with cramps, such with a person called Unzué, which is a very famous soccer trainer here in Spain, so please, if you don't mind, I'll be very thankful if you take the time to read my story.
With that out of the way, I'll go to the point: I'm a male living in Spain and i am 33 years old.
I think the first symptom started a year ago. Every time I used an elevator or went down stairs, when I put my right foot on plain ground, it felt like it would slip or being unable to maintain my balance and that I would fell off, but this sensation was only for 1 second or 2, so I didn't pay much attention to it.
Fast forward 1 year, and last week, I went to a party, and the day after when I tried to sleep, I had the most myoclonus I had in my life (like 10 or 15). I eventually felt asleep, and the next day, I started to get little fasciculations on my legs, apart from a sensation that I would describe as little cramps on my legs. I also had fasciculations on my torso, back, face, arms and hands but not even close to as much as my legs. On my legs is 24/7 non stop.
Those little cramps are not as painful as a normal cramp, in which you have to stop everything you're doing and stretch, but they're very similar to a cramp. Those fasciculations and "cramps", worsened quickly through this week to the point that I have a sensation on my legs that seems like 2 worms are going through inside my muscles and eating them, I also have sore/stiffed muscles (I imagine that from those rare cramps), and sometimes a burning sensation which at this point I don't even know if it comes from those weird cramps or from any other thing. Matter of fact, I'm having all of those sensations while I'm writing this, but those are more pronounced at night. It's very uncomfortable.
Apart from that, the "slipping" sensation I had in my right foot worsened and now every time I walk, I have this sensation for every 2 or 3 steps I make. Every now and then this sensation is so strong that it scares me and I stop walking and thinking "what the heck was even that?". Also this "slipping" sensation also moved to my left foot.
I have an appointment with a neuro next month, but on the meanwhile, I would like to know, if possible, your opinion on that, please. Did someone had a similar set of symptoms? I know ALS symptoms can vary a lot from person to person, but it would be helpful for me if someone had similar symptoms.
Again thank you very much to all the people that might come across this post and read it.
Best Regards.
First of all, I would like to thank all of the people that might see this post and take their time to read and respond to it.
Apart from that I've also read the post which indicates all of the things I have to consider before even thinking about posting. There says that the initial symptom of ALS is clinical weakness, which I don't have (at the moment), but I've also heard stories which ALS began with cramps, such with a person called Unzué, which is a very famous soccer trainer here in Spain, so please, if you don't mind, I'll be very thankful if you take the time to read my story.
With that out of the way, I'll go to the point: I'm a male living in Spain and i am 33 years old.
I think the first symptom started a year ago. Every time I used an elevator or went down stairs, when I put my right foot on plain ground, it felt like it would slip or being unable to maintain my balance and that I would fell off, but this sensation was only for 1 second or 2, so I didn't pay much attention to it.
Fast forward 1 year, and last week, I went to a party, and the day after when I tried to sleep, I had the most myoclonus I had in my life (like 10 or 15). I eventually felt asleep, and the next day, I started to get little fasciculations on my legs, apart from a sensation that I would describe as little cramps on my legs. I also had fasciculations on my torso, back, face, arms and hands but not even close to as much as my legs. On my legs is 24/7 non stop.
Those little cramps are not as painful as a normal cramp, in which you have to stop everything you're doing and stretch, but they're very similar to a cramp. Those fasciculations and "cramps", worsened quickly through this week to the point that I have a sensation on my legs that seems like 2 worms are going through inside my muscles and eating them, I also have sore/stiffed muscles (I imagine that from those rare cramps), and sometimes a burning sensation which at this point I don't even know if it comes from those weird cramps or from any other thing. Matter of fact, I'm having all of those sensations while I'm writing this, but those are more pronounced at night. It's very uncomfortable.
Apart from that, the "slipping" sensation I had in my right foot worsened and now every time I walk, I have this sensation for every 2 or 3 steps I make. Every now and then this sensation is so strong that it scares me and I stop walking and thinking "what the heck was even that?". Also this "slipping" sensation also moved to my left foot.
I have an appointment with a neuro next month, but on the meanwhile, I would like to know, if possible, your opinion on that, please. Did someone had a similar set of symptoms? I know ALS symptoms can vary a lot from person to person, but it would be helpful for me if someone had similar symptoms.
Again thank you very much to all the people that might come across this post and read it.
Best Regards.
