markb_1984
New member
- Joined
- Sep 28, 2021
- Messages
- 2
- Reason
- Learn about ALS
- Diagnosis
- 00/0000
- Country
- UK
I am a 37yr old, living in the UK.
Back at the beginning of this year, my partner and partner's son contracted covid. I tested negative, but was fatigued during the time they had it. Within a week, I shouldn't got a severe constant pain in my lower spine. Prior to this I had episodes in 2020 of my left hand paining which I had to stop wearing my fitbit watch for. I should also say to be thorough that I have also suffered from around March 2020 onwards with acid reflux for which out of nowhere I had a severe episode for which I needed an ambulance callout for to be checked as it can mimic a heart attack, but wasn't in that case.
Towards the end of January 2021 the pain in my lower spine started to improve, but my left hand and wrist was painful and made it hard to sleep. From this point on over a few months, the pain in my spine had subsided, but had spread to be in my wrist, the bones at base of my fingers and along my middle finger. as well as going down the base of my left foot and big toe.
In around July to August, the pain progressed to be in both arms and legs. The pains I have been feeling have been a mixture of burning, dull achesand throbbing / pulsating.
I have had an XRay which only showed me to have mechanical spinal disease and kyphoscoliosis. There was a period of 3 months from January to April where my vitamin D was low but has since returned to normal level as of April 2021.
I am currently awaiting my MRI result which has been a point of frustration not hearing the result almost a month after it has been reported.
I was prescribed nortriptyline which I have tried my hardest to take, but after 10 days have decided to cut back and stop owing to it making no real difference.
In the last 2 weeks, starting 4-5 days after starting my nortriptyline, I have experienced an aching, painful right arm and shoulder which is getting worse each day. I am also finding it harder to walk and especially going down stairs with my knees are weaker (popping and cracking) each day to the point where if this deterioration continues, I may no longer be able to go down the stairs and walking is becoming increasingly harder. I am also still getting pains in my hands. At night time, I am finding I am getting constant pain in my legs which also make them restless and makes sleeping very difficult.
The other feature is that I have been suffering with fasciculations in my left hand (wrist and finger) which lasted for a good hour one evening. I've also had twitching occurring in my left foot and also in my back just between my shoulder and spine.
I am awaiting a rheumatologist to report back my MRI so I can know what I need to do next. Up until my symptoms had progressed to a physical deterioration, I hadn't really considered MND/ALS, but with my marked physical deterioration alongside my progressive worsening symptoms, I am now concerned that I may well actually have it and am in the early stages on being symptomatic.
Really appreciate the advice from everyone in this community whilst awaiting the results of my MRI and deciding what to do next.
Back at the beginning of this year, my partner and partner's son contracted covid. I tested negative, but was fatigued during the time they had it. Within a week, I shouldn't got a severe constant pain in my lower spine. Prior to this I had episodes in 2020 of my left hand paining which I had to stop wearing my fitbit watch for. I should also say to be thorough that I have also suffered from around March 2020 onwards with acid reflux for which out of nowhere I had a severe episode for which I needed an ambulance callout for to be checked as it can mimic a heart attack, but wasn't in that case.
Towards the end of January 2021 the pain in my lower spine started to improve, but my left hand and wrist was painful and made it hard to sleep. From this point on over a few months, the pain in my spine had subsided, but had spread to be in my wrist, the bones at base of my fingers and along my middle finger. as well as going down the base of my left foot and big toe.
In around July to August, the pain progressed to be in both arms and legs. The pains I have been feeling have been a mixture of burning, dull achesand throbbing / pulsating.
I have had an XRay which only showed me to have mechanical spinal disease and kyphoscoliosis. There was a period of 3 months from January to April where my vitamin D was low but has since returned to normal level as of April 2021.
I am currently awaiting my MRI result which has been a point of frustration not hearing the result almost a month after it has been reported.
I was prescribed nortriptyline which I have tried my hardest to take, but after 10 days have decided to cut back and stop owing to it making no real difference.
In the last 2 weeks, starting 4-5 days after starting my nortriptyline, I have experienced an aching, painful right arm and shoulder which is getting worse each day. I am also finding it harder to walk and especially going down stairs with my knees are weaker (popping and cracking) each day to the point where if this deterioration continues, I may no longer be able to go down the stairs and walking is becoming increasingly harder. I am also still getting pains in my hands. At night time, I am finding I am getting constant pain in my legs which also make them restless and makes sleeping very difficult.
The other feature is that I have been suffering with fasciculations in my left hand (wrist and finger) which lasted for a good hour one evening. I've also had twitching occurring in my left foot and also in my back just between my shoulder and spine.
I am awaiting a rheumatologist to report back my MRI so I can know what I need to do next. Up until my symptoms had progressed to a physical deterioration, I hadn't really considered MND/ALS, but with my marked physical deterioration alongside my progressive worsening symptoms, I am now concerned that I may well actually have it and am in the early stages on being symptomatic.
Really appreciate the advice from everyone in this community whilst awaiting the results of my MRI and deciding what to do next.