glupavomomiche
Distinguished member
- Joined
- Sep 25, 2011
- Messages
- 282
- Reason
- PALS
- Diagnosis
- 09/2011
- Country
- US
- State
- Texas
- City
- Podunk
Hello everyone!
Ok, while I have lots of questions, this one is my biggie.
Anyone else have the unusual ALS progression of cortical hemiparetic?
In the early days of seeing docs (I let things get pretty far before I saw a doctor), they all immediately said I had right hemiparesis... my right arm and right leg have symptoms (also the right of my jaw and neck and torso), mostly UMN. It wasn't until I saw the second opinion ALS doctor that I ever heard the term cortical hemiparetic. I've tried looking it up online and in some neurology textbooks, but I find just one tiny reference to it and the suggestion that it is rare and only happens in fALS. Well, I have a grandfather with CIDP, and my grandmother now claims that it was suggested he might (a really big might) have ALS and that CIDP can turn into ALS (have yet to find that written in any literature anywhere). Not sure what to think about that.
In any case, I would like to know if anyone else has this and how it went (or if you've even heard of it). I'm curious how this goes progressionwise, especially now that I've had bulbar symptoms for quite a few months, which seems totally out of line since my left leg can still kick like a mule (but it does have that dreaded Babinski sign).
Thanks! :grin:
Ok, while I have lots of questions, this one is my biggie.
Anyone else have the unusual ALS progression of cortical hemiparetic?
In the early days of seeing docs (I let things get pretty far before I saw a doctor), they all immediately said I had right hemiparesis... my right arm and right leg have symptoms (also the right of my jaw and neck and torso), mostly UMN. It wasn't until I saw the second opinion ALS doctor that I ever heard the term cortical hemiparetic. I've tried looking it up online and in some neurology textbooks, but I find just one tiny reference to it and the suggestion that it is rare and only happens in fALS. Well, I have a grandfather with CIDP, and my grandmother now claims that it was suggested he might (a really big might) have ALS and that CIDP can turn into ALS (have yet to find that written in any literature anywhere). Not sure what to think about that.
In any case, I would like to know if anyone else has this and how it went (or if you've even heard of it). I'm curious how this goes progressionwise, especially now that I've had bulbar symptoms for quite a few months, which seems totally out of line since my left leg can still kick like a mule (but it does have that dreaded Babinski sign).
Thanks! :grin: