Gtee88
New member
- Joined
- Sep 25, 2020
- Messages
- 2
- Reason
- Learn about ALS
- Diagnosis
- 00/0000
- Country
- AU
- State
- VI
- City
- Melbourne
Hi all. My name is George 32yo. i hate to be bothersome but i hope i can find some help on here. I have had a really rough year and convinced i have als and its affecting my everyday life. Will be as informative as possible as i know your time is precious.
Back in March 2020 i had a brain MRI showed a 4mm t2 flair lesion reffered to neuro, Neurologist said its just an aging lesion or from birth no clinically significant.
May 2020 had a blood test, CK levels raised 350 (0-200 is normal range) doc ordered me to get re tested and ck raised to 1000 then doc told me to relax and not exert myself for 1 week then they dropped to 200 (normal)
I wake often with occipital pain and stiffness
Sometimes i do feel tingling sensations on skin and numbish feeling but not really numb if you get me?
About 4 months ago after seeing a myotherapist i started getting muscle fasiculations out of the blue all over, started magnesium b12 and calcium did not help. now i know i have had these before but they are now daily: Hands, Feet, Calves, Abdomen, Quads, back muscles, tongue absolutely random spots at random times all day everyday.
So made an apt for a Nerve conduction study and a EMG everything came back completely normal but still didnt ease my mind. I have no weakness although i do feel fatigued at times i have been on valium for 6 years 1x5mg nightly to calm me down.
For the past 4 months i have been measuring all muscle groups and keeping tabs for atrophy months but they are all growing. I do pushups (140) daily started 4 months ago could only do 70 and getting stronger and doing more daily but i still feel weak
Phone consult with professor of neuro DX me with BFS but it feels like more to me.
Hand dynomometer RH 85KG LH 67KG
Gait normal
Babinski negative
Refelxes all +1 (normal)
Mild cervical spondylosis c3/4
I just dont know where these twitches came from sometimes my thumbs just take off and want to do there own thing without my control. With all my symptoms what do you guys think? Could this be ALS will post my emg results neuro said i have high anxiety i am a nervous person and lost 2 very close immediate loved ones this year to serious illness.
With the CK levels and Fasics all over daily and brain lesion i am so worried even though my CK went back to normal and EMG normal i am still convinced. Please help with any light i would really appreciate. Sorry if this is an inconvenience its taken me alot of time to get to have the courage to post on here but i cant handle this twitching all over daily especially after stretching muscles or texting on phone thumbs go mad even sneezing will make my abdomen twitch. I jad this EMG done 5 weeks into these fasics would it have picked als up? Could it be to early? all muscles were evaluated that fasiculate. Bless you all.
Back in March 2020 i had a brain MRI showed a 4mm t2 flair lesion reffered to neuro, Neurologist said its just an aging lesion or from birth no clinically significant.
May 2020 had a blood test, CK levels raised 350 (0-200 is normal range) doc ordered me to get re tested and ck raised to 1000 then doc told me to relax and not exert myself for 1 week then they dropped to 200 (normal)
I wake often with occipital pain and stiffness
Sometimes i do feel tingling sensations on skin and numbish feeling but not really numb if you get me?
About 4 months ago after seeing a myotherapist i started getting muscle fasiculations out of the blue all over, started magnesium b12 and calcium did not help. now i know i have had these before but they are now daily: Hands, Feet, Calves, Abdomen, Quads, back muscles, tongue absolutely random spots at random times all day everyday.
So made an apt for a Nerve conduction study and a EMG everything came back completely normal but still didnt ease my mind. I have no weakness although i do feel fatigued at times i have been on valium for 6 years 1x5mg nightly to calm me down.
For the past 4 months i have been measuring all muscle groups and keeping tabs for atrophy months but they are all growing. I do pushups (140) daily started 4 months ago could only do 70 and getting stronger and doing more daily but i still feel weak
Phone consult with professor of neuro DX me with BFS but it feels like more to me.
Hand dynomometer RH 85KG LH 67KG
Gait normal
Babinski negative
Refelxes all +1 (normal)
Mild cervical spondylosis c3/4
I just dont know where these twitches came from sometimes my thumbs just take off and want to do there own thing without my control. With all my symptoms what do you guys think? Could this be ALS will post my emg results neuro said i have high anxiety i am a nervous person and lost 2 very close immediate loved ones this year to serious illness.
With the CK levels and Fasics all over daily and brain lesion i am so worried even though my CK went back to normal and EMG normal i am still convinced. Please help with any light i would really appreciate. Sorry if this is an inconvenience its taken me alot of time to get to have the courage to post on here but i cant handle this twitching all over daily especially after stretching muscles or texting on phone thumbs go mad even sneezing will make my abdomen twitch. I jad this EMG done 5 weeks into these fasics would it have picked als up? Could it be to early? all muscles were evaluated that fasiculate. Bless you all.