mlegrand
New member
- Joined
- Jul 12, 2022
- Messages
- 1
- Reason
- Learn about ALS
- Diagnosis
- 00/0000
- Country
- FR
- City
- Paris
Good evening everybody,
Thanks for all the time and energy to provide people with support and answers.
I suffer from body wide spread fasciculations since my second anti-covid vaccine injection (Pfizer), summer 2021, very focused on both my legs, quite impressive at night when going to bed.
I got checked by a neurologist back then last year who assessed the legs and said probably BFS as no specific findings. I take 50mg pregabalin daily since then as he prescribed.
Nevertheless, since 3 months I started to experience a twitching in my left arm, brachioradialis muscle.
Being used to fasciculations, these do not look anything I experienced before. It comes in series of between 5 to 15+ fast successive twitches, then stop for a few seconds up to 1 minute, and then start again. As a comparison, my post vaccine fascics I experienced until now were random in location and frequency.
I waited weeks to see if it goes away but stay continuous, always at the same place.
Below a video, its not easy to render with a camera, but the twitches are visible though:
Is it something unusual or does it fall under the BFS spectrum?
Thanks
Michael
Thanks for all the time and energy to provide people with support and answers.
I suffer from body wide spread fasciculations since my second anti-covid vaccine injection (Pfizer), summer 2021, very focused on both my legs, quite impressive at night when going to bed.
I got checked by a neurologist back then last year who assessed the legs and said probably BFS as no specific findings. I take 50mg pregabalin daily since then as he prescribed.
Nevertheless, since 3 months I started to experience a twitching in my left arm, brachioradialis muscle.
Being used to fasciculations, these do not look anything I experienced before. It comes in series of between 5 to 15+ fast successive twitches, then stop for a few seconds up to 1 minute, and then start again. As a comparison, my post vaccine fascics I experienced until now were random in location and frequency.
I waited weeks to see if it goes away but stay continuous, always at the same place.
Below a video, its not easy to render with a camera, but the twitches are visible though:
Is it something unusual or does it fall under the BFS spectrum?
Thanks
Michael