NJTwitch96
Member
- Joined
- May 7, 2019
- Messages
- 17
- Reason
- Other
- Diagnosis
- 00/0000
- Country
- US
- State
- NJ
- City
- Newark
Sorry for posting another thread, but I have a follow up to my last post, and that thread was closed.
I started having muscle twitches in random spots all over my body, which started in my eye, then moved to my right arm, and were mainly focused on my calves and feet. The frequency of them all has decreased now greatly. In fact, some days, I barely feel a twitch at all. I still have trouble swallowing, which is worse some days than others. However, my last few days have been better than the days before, but that has changed some days with more difficulty than others.
I previously had a Chiari decompression surgery, and have herniated discs, and damage from a cyst that was on my spine. I went to my GP, who said she didn't think it was ALS or MS. My doctor also put me on Zoloft because she said it sounds like I have health anxiety. I then emailed my neurosurgeon, who told me to see a neurologist. I went to a neurologist, who has a specialized interest in MND. She used to only see ALS patients, but now does general neurology as well. She also said it wasn't ALS. In fact, she said 100% she knew it wasn't ALS. I had no hyperflexxia, and no muscle weakness. She also said slurred speech would be the first sign of bulbar, not difficulty swallowing. She's having me do an MRI this week though.
So, I went to an ENT, who looked down my throat with a camera and diagnosed me with LPR, which she said could be causing my difficulty swallowing. She put me on Omeprazole for that. I've also had a sore throat for a little over a week, and an on and off hoarse voice. The doctor said that LPR can cause that too. I've also been anxiously biting my cheeks skin on the inside of my mouth, as a nervous tick.
Today and yesterday I noticed I have extra saliva in my mouth. I'm not drooling, but I can tell I have more than usual. Should I be worried this is a sign of my neurologist missing ALS?
I started having muscle twitches in random spots all over my body, which started in my eye, then moved to my right arm, and were mainly focused on my calves and feet. The frequency of them all has decreased now greatly. In fact, some days, I barely feel a twitch at all. I still have trouble swallowing, which is worse some days than others. However, my last few days have been better than the days before, but that has changed some days with more difficulty than others.
I previously had a Chiari decompression surgery, and have herniated discs, and damage from a cyst that was on my spine. I went to my GP, who said she didn't think it was ALS or MS. My doctor also put me on Zoloft because she said it sounds like I have health anxiety. I then emailed my neurosurgeon, who told me to see a neurologist. I went to a neurologist, who has a specialized interest in MND. She used to only see ALS patients, but now does general neurology as well. She also said it wasn't ALS. In fact, she said 100% she knew it wasn't ALS. I had no hyperflexxia, and no muscle weakness. She also said slurred speech would be the first sign of bulbar, not difficulty swallowing. She's having me do an MRI this week though.
So, I went to an ENT, who looked down my throat with a camera and diagnosed me with LPR, which she said could be causing my difficulty swallowing. She put me on Omeprazole for that. I've also had a sore throat for a little over a week, and an on and off hoarse voice. The doctor said that LPR can cause that too. I've also been anxiously biting my cheeks skin on the inside of my mouth, as a nervous tick.
Today and yesterday I noticed I have extra saliva in my mouth. I'm not drooling, but I can tell I have more than usual. Should I be worried this is a sign of my neurologist missing ALS?