Continued atrophy and stiffness, no answers

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Pack456

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Learn about ALS
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Wisconsin
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Milwaukee
Hello All,

After numerous visits to the neurologist, neuromuscular specialist, physical therapist- I still have worsening atrophy in my right quad and thigh as well as the web of my right hand.

Stiffness in my right foot/toes and hand as well. 2 clean emg's on my right leg, as well as clean emg on my hand. I am still holding on to those. The atrophy is clearly there- just unsure what is causing it. It has been about 6 months since all of the symptoms began.

I have a follow up visit with the neuromuscular specialist in July. Unfortunately in wait and see mode. Any insights would be appreciated!

Thanks everyone for all that you do. You all are some of the most caring individuals I have ever "met".
 
Has your doc diagnosed atrophy? What did PT and specialist say? Truly, you can not self-diagnose atrophy. Three cleam emgs seems to indicate that ALS is not high on the diagnositic list.
Tracy
 
Atrophy, or at list some sort of tissue loss has been confirmed by doctors, but only by looking. All tests have been clear so far. I may push for a MRI of the lumbar spine, as I have only had one on the cervical spine. Would a muscle biopsy show anything?
 
I have attached pictures of my legs where you can see the atrophy. Clean emgs, yet this, with really no answers from the doctors.
 

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Very sorry to hear your concerns, weather the results are positive or negative we all seem to have to go through the wait and see mode. It sucks but that is how it is.. I was hung in the wait and see mode for about two years, but it made no difference to me because I did not know what they were looking for, my GP had thought I had a mini stroke and I thought that is what they were checking, so I had no need to worry. I never searched the internet because I had no need to, I thought I knew the problem. So when the term ALS came up I was shocked but there was nothing I could do about it, but the way it worked out it saved me two years of being scared and wondering what was going to happen. I think it was best how it worked with no worries until the end.
Al
 
Thank you Al. I have an appointment set up at Mayo in Minnesota in June. I hope to get some answers there. I will be sure to update. God Bless.
 
Just a quick update- I had my 6 month follow up emg yesterday. Everything was clean. The doctor still has no answers as to the atrophy, but says it is not a neuromuscular issue. I will take my clean emg's and run with them- but still searching for what could be causing these issues. I will be sure to update if I ever get any answers so others in the same situation may be able to see in the future. God Bless you all. Such amazing people.
 
Great news Pack456. Glad it isn't ALS. Hopefully you can find out what is going on and get it fixed soon.
 
Thread closed- multi id, user banned
 
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