Amandar8585
Member
- Joined
- Jun 25, 2020
- Messages
- 16
- Reason
- Learn about ALS
- Diagnosis
- 00/0000
- Country
- UK
- State
- UK
- City
- Manchester
Hi all,
i’m looking for a little support/advice aswell as someone to talk to about all the scary symptoms I’m having as my partner refuses to discuss the possibility of me having Als until i have seen my neurologist.
I’ve recently been referred to a neurologist by my gp due to tongue fasciculations and muscle twitches which happen all over when I’m at rest. Before the muscle twitching started, i had right sided eye twitching daily for 6 weeks which just disappeared. I saw the optician who said if it came back i had to go back and see him which so far, it hasn’t. For quite sometime i have had decreased strength in my upper left arm which initially started as a sore shoulder, which then led to numbness and tingling in pinky & ring finger. I have a 10 month old baby and carrying him on my left side is challenging after 5 minutes.
my gp recently carried out a neurological assessment on me to see if my referral needed to be made as an urgent or routine one, She made a routine referral after my assessment. She noted that my left calf muscle was shortened so my lower limbs are asymmetrical, I believe this to be due to stiff muscles, i seem to have an issue relaxing my muscles. She was testing my reflexes, left knee was a little excitable compared to the other. Then she went on to test the plantar reflex, now i felt her stroking my foot, but my toes didn’t react, they just stayed still. I definitely used to be ticklish. She also looked inside my mouth and asked how long my soft palate had been sagging on the left side, to which I replied I didn’t know. I’ve noticed it for some time, however back in March i saw an Ent consultant as i have a cyst on the sagging part of my soft palate, he said he wasn’t concerned as it was still mobile (moving up and down) however it still concerns me as I’ve read it’s caused by nerve damage.
yesterday i was climbing up and down ladders at work doing some painting and my left leg was shaking like i was struggling to bear weight on it. My joints hurt after any exertion, especially the hips and buttocks. I also have a problem when going to sleep at a night and I’m not sure if it’s related to the unilateral sagging of soft palate, but just as i nod off, i jerk awake and sometimes gasp for air like i have stopped breathing and this can happen for an hour or so. i think this contributes to my fatigue in the day as it’s happened throughout the night also as I’ve woken my partner up frightened. Occasionally i wake up feeling sore below the ribs and I wonder if it’s the diaphragm being weak and I’m struggling to breathe in my sleep? Other symptoms are i occasionally struggle to swallow and my lisp has gotten slightly worse as if after talking for a while my tongue is tired, so my pronunciation sometimes sounds a little sluggish, same for chewing too. occasional jaw tiredness, but i do always feel like my mouth is dry.
Any advice is welcome, sorry if any of my post has offended anyone as this isn’t my intention, I’m very anxious worrying about this. Sorry for the long post too.
i’m looking for a little support/advice aswell as someone to talk to about all the scary symptoms I’m having as my partner refuses to discuss the possibility of me having Als until i have seen my neurologist.
I’ve recently been referred to a neurologist by my gp due to tongue fasciculations and muscle twitches which happen all over when I’m at rest. Before the muscle twitching started, i had right sided eye twitching daily for 6 weeks which just disappeared. I saw the optician who said if it came back i had to go back and see him which so far, it hasn’t. For quite sometime i have had decreased strength in my upper left arm which initially started as a sore shoulder, which then led to numbness and tingling in pinky & ring finger. I have a 10 month old baby and carrying him on my left side is challenging after 5 minutes.
my gp recently carried out a neurological assessment on me to see if my referral needed to be made as an urgent or routine one, She made a routine referral after my assessment. She noted that my left calf muscle was shortened so my lower limbs are asymmetrical, I believe this to be due to stiff muscles, i seem to have an issue relaxing my muscles. She was testing my reflexes, left knee was a little excitable compared to the other. Then she went on to test the plantar reflex, now i felt her stroking my foot, but my toes didn’t react, they just stayed still. I definitely used to be ticklish. She also looked inside my mouth and asked how long my soft palate had been sagging on the left side, to which I replied I didn’t know. I’ve noticed it for some time, however back in March i saw an Ent consultant as i have a cyst on the sagging part of my soft palate, he said he wasn’t concerned as it was still mobile (moving up and down) however it still concerns me as I’ve read it’s caused by nerve damage.
yesterday i was climbing up and down ladders at work doing some painting and my left leg was shaking like i was struggling to bear weight on it. My joints hurt after any exertion, especially the hips and buttocks. I also have a problem when going to sleep at a night and I’m not sure if it’s related to the unilateral sagging of soft palate, but just as i nod off, i jerk awake and sometimes gasp for air like i have stopped breathing and this can happen for an hour or so. i think this contributes to my fatigue in the day as it’s happened throughout the night also as I’ve woken my partner up frightened. Occasionally i wake up feeling sore below the ribs and I wonder if it’s the diaphragm being weak and I’m struggling to breathe in my sleep? Other symptoms are i occasionally struggle to swallow and my lisp has gotten slightly worse as if after talking for a while my tongue is tired, so my pronunciation sometimes sounds a little sluggish, same for chewing too. occasional jaw tiredness, but i do always feel like my mouth is dry.
Any advice is welcome, sorry if any of my post has offended anyone as this isn’t my intention, I’m very anxious worrying about this. Sorry for the long post too.