Bobby888
New member
- Joined
- Nov 3, 2017
- Messages
- 9
- Reason
- Loved one DX
- Country
- CA
- State
- Ontario
- City
- Oakville
Hi Everyone,
Haven’t posted in about a year. My father was diagnosed approx 18 months ago with ALS and he is in the final stages. He has trouble holding up his head, can barely walk on his own, not eating anymore on his own and getting all his nutrients from a feeding tube.
Just this week his speaking has changed and he is having a lot of difficulty expressing himself and getting the words out. He has been hospitalized for the last 2 weeks due to a pneumonia that has now been treated and has gone.
My question is his lungs are clear now of pneumonia but he is still much worse than he was 2 weeks ago and is completely on his bipap machine and can only take it off for a few seconds to answer a question and then puts it right back on. He hasn’t slept in over a week getting 2 hours maximum per day!!
How long can he survive if he is on complete bed rest, breathing with his bipap all day, eating through his feeding tube 1200ml approx per day.. There is not much quality of life and he seems to be struggling every second for air and it’s very difficult to watch. As much as I want him to be around as long as possible I don’t want him to suffer and I’m not sure how long someone with ALS can live like this.
Does this sound like it’s close to the end? Days or weeks or possibly months?
Haven’t posted in about a year. My father was diagnosed approx 18 months ago with ALS and he is in the final stages. He has trouble holding up his head, can barely walk on his own, not eating anymore on his own and getting all his nutrients from a feeding tube.
Just this week his speaking has changed and he is having a lot of difficulty expressing himself and getting the words out. He has been hospitalized for the last 2 weeks due to a pneumonia that has now been treated and has gone.
My question is his lungs are clear now of pneumonia but he is still much worse than he was 2 weeks ago and is completely on his bipap machine and can only take it off for a few seconds to answer a question and then puts it right back on. He hasn’t slept in over a week getting 2 hours maximum per day!!
How long can he survive if he is on complete bed rest, breathing with his bipap all day, eating through his feeding tube 1200ml approx per day.. There is not much quality of life and he seems to be struggling every second for air and it’s very difficult to watch. As much as I want him to be around as long as possible I don’t want him to suffer and I’m not sure how long someone with ALS can live like this.
Does this sound like it’s close to the end? Days or weeks or possibly months?
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