ineedhope
New member
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- Mar 4, 2020
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- UK
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- UK
Hi everyone, first of all I want to thank all of the amazing ALS people who help every single person on this forum even though they’re dealing with a lot of hard stuff.
I’m 27 year old female. I’m working as a banker and I’ve been doing pilates for 3 years. On december 2019 I noticed constant twitching at the bottom of my right foot. I tried to see the point that’s been twitching but I couldn’t. That twitching feeling didn’t go away during my pilates lessons.
So I got anxious and start to search online. I thought that I injured muscle or something like that. What came up from the internet was ALS. As you can imagine I got really scared. I started having twitches everywhere. I went to a neurologist. The neuro did a real quick examination (very limited strength test) and told me everything looks fine and asked for a blood test. According to the blood test everything was fine but my CK-kreatin level was 206 (the normal is 180). She said that CK maybe high due to the exercise I did.
Days passed and I still have that twitching at my right foot. It feels like my toe muscles are twitching from inside, like there is an insect inside. A vibrational feeling.
A week ago I noticed my right calf was twitching constantly. These twiches are very small pops. I’ve been watching ALS faciculations on youtube and trying to differ my twitches from ALS ones. Yesterday I went to another neurologist and this time the dr did a very detailed examination. She said that everything is fine. I have to mention that I didn’t notice any muscle weekness or atrophy. Everyday I check if I can walk on my heels or on my toes. I check myself during pilates. I can jump. I check if I can still bottom up.
I read about the diagnosis stories and some people mentioned how their Emg’s were clean but they got diagnosed. And some people mentioned that they were able to run while they got diagnosed. I read CK levels of Als patients maybe slightly above the normal levels. I’m about to lose my mind. I don’t want to take your time with my stupid concerns but I have a few questions : 1-) Should I get an EMG test? 2-) Can ALS start from a twitchy/fibrational thing from your foot? 3-) Does fasciculations start right before muscle weekness?
I’m 27 year old female. I’m working as a banker and I’ve been doing pilates for 3 years. On december 2019 I noticed constant twitching at the bottom of my right foot. I tried to see the point that’s been twitching but I couldn’t. That twitching feeling didn’t go away during my pilates lessons.
So I got anxious and start to search online. I thought that I injured muscle or something like that. What came up from the internet was ALS. As you can imagine I got really scared. I started having twitches everywhere. I went to a neurologist. The neuro did a real quick examination (very limited strength test) and told me everything looks fine and asked for a blood test. According to the blood test everything was fine but my CK-kreatin level was 206 (the normal is 180). She said that CK maybe high due to the exercise I did.
Days passed and I still have that twitching at my right foot. It feels like my toe muscles are twitching from inside, like there is an insect inside. A vibrational feeling.
A week ago I noticed my right calf was twitching constantly. These twiches are very small pops. I’ve been watching ALS faciculations on youtube and trying to differ my twitches from ALS ones. Yesterday I went to another neurologist and this time the dr did a very detailed examination. She said that everything is fine. I have to mention that I didn’t notice any muscle weekness or atrophy. Everyday I check if I can walk on my heels or on my toes. I check myself during pilates. I can jump. I check if I can still bottom up.
I read about the diagnosis stories and some people mentioned how their Emg’s were clean but they got diagnosed. And some people mentioned that they were able to run while they got diagnosed. I read CK levels of Als patients maybe slightly above the normal levels. I’m about to lose my mind. I don’t want to take your time with my stupid concerns but I have a few questions : 1-) Should I get an EMG test? 2-) Can ALS start from a twitchy/fibrational thing from your foot? 3-) Does fasciculations start right before muscle weekness?
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