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oscar1

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Some of your symptoms sound like extreme anxiety, maybe its viral . Chronic fatigue causes weakness and twitches as wellas sensory symptoms
 

Bella26

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Hey guys, hope everyone is having a good day today! I had my EMG and nerve conduction study today.

The neurologist attached electrodes to my right hand and right leg/foot and shocked me a bunch of times. Then made me do things like press my fingers together and flex my toes while he looked at a screen. There were no needles and he didn't do the left side of my body. Here are my results. Is this sufficient testing?

My report details:

NCS
Right median
Right ulnar > all normal
Right deep peroneal


EMG
Right thenar
Right hypothenar >all normal
Right extensor digitorum brevis
Right gastrocnemius

Would he have picked up something abnormal if it was ALS or something serious?

Thanks, Bella :)
 

momap53

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This is very good news for you!

Yes, there are definite signs on EMG that would indicate that ALS could be a possibility.
 

Luke

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Test results are clean as a whistle. Congrats!
 

Bella26

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So it's been almost a month since my symptoms came back and I've had days in between with no twitching or feelings of weakness. Yet still in the last 2 weeks I developed symmetrical dents in both legs right above my knees. Can someone help me with how to post a pic? I've lost around 8 pounds in the past month due to stress and not eating well so I definitely lost muscle everywhere but this doesn't seem normal. Please help... My doctor sent me home after the clean surface emg and now I'm considering going back to Canada to see another doctor. Does atrophy start in the thighs? Symmetrically? I'm desperate for answers now
 

bigguy

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Can ALS go away for 5 months and return this severe due to a workout?

Absolutely not. You don't have ALS. Your symptoms are so unconcerning I'm not even sure why your neurologist even considered doing an EMG/NCV. He probably mistakenly thought it would alleviate your anxiety.

You're showing the same classical symptoms of anxiety that I was showing when I began this time and money wasting, fruitless episode of hypochondria. Seriously? Symmetrical dents? Weight loss unrelated to inability to eat? A remission period of 5 months?

Stop wasting your money on chasing an ALS diagnosis and walk away from this site. If you can, use deep breathing exercises, meditation, and immerse yourself in something you love. If you can't, seek medication for your anxiety; chances are that the meds will help with your twitching if it really is that bothersome.
 
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Ms. Pie

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Clean EMG means no ALS. No need for pictures. Good luck to you Sweets!
 

ottawa girl

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Bella-

I am thrilled you had a clean test. Normal is good! Please, stop fretting if you can. No- atrophy is not symmetrical (in my case at least). You are seeing things that likely have always been there. I have lost muscle- can barely hold a cup a coffee, umbrella or hair dryer and it's HIGHLY noticeable. You're so worried and stressed, your appetite (and maybe sleep) is adversely affected.

Please be happy- it's not ALS! Relax if you can or go back to your GP and explain your fears- there may be drugs available to help you get over this fear and anxiety.

Good luck- and stop examining your body. All that intense gawking can cause wrinkles!
 

Bella26

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Thanks for the responses guys.. It makes me feel better to hear those things until I look in the mirror and see the dents again. It is absolutely something new and does not look normal by any means. It looks like a chunk of my lower thighs is missing. Is there anyone willing to look at a pic and let me know if I should go back to the doc? I cam email the picture since I have no idea how to post here.

I don't know if I have ALS but something is going on and I feel like I can't ignore it. The fact that my emg was a surface emg also makes me worry that it just isn't good enough to detect something early.
 

Grateful

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You are now telling us that you are looking in the mirror to see dents which you previously told us were right above your knees.

And that is the moment when I stop believing that you are genuinely anxious about the possibility that you have ALS/MND...
 

Luke

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Bella, can't you see in reading over your own posts that you're not coming from a rational place right now? There's only so much a group of strangers on an Internet forum can do to help. Either you accept the help and move on, or you don't. It sounds like your needs now exceed the scope of this forum, so it's time to head back to your doctor for further guidance. To be clear, no one hear believes you have any major health problem and that your worries are unfounded. I think we've done all we can. Best of luck.
 

bigguy

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Look bella, if you have a dent right now without weakness, it is not atrophy.

If you have TWO SYMMETRICAL DENTS, I don't care even if you have weakness, it IS NOT ATROPHY. Quoting from the BFS forum, God decided to make these dents in your body so that the muscles and tendons would fit and operate better, it's as simple as that.

EMGs will detect problems before you are symptomatic if there is a problem: end of story. If the EMG is done when you actually have atrophy, the EMG will DEFINITELY detect a problem. The only way it wouldn't detect it would be if the person administering the EMG was in fact, a lab monkey. It doesn't matter whether the EMG was surface or needle.
 

Ms. Pie

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You do not have ALS. I do and have no dents in my lower thighs, or feet, or anywhere. I do have atrophy which makes my legs, hands and arms skinnier. No dents though. Clean EMG means no ALS. Congratulations!
 

Bella26

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Pictures by isabella26261 - Photobucket

I posted this before but it didn't work so sorry if it posts twice. I put up 3 pictures of the dents above my knees that appeared over the last 2 weeks. Does it look like atrophy?
 

Bella26

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Hey everyone, hope you have all been doing well. I've really been trying to stay busy and calm down about all of this and I feel like I'm in a more rational place right now. Maybe I do not have ALS. But I have something. It is sooo hard to ignore what is going on with my body.

I know you guys think I am imagining atrophy but I now have the skinniest forearms and normal upper arms. Bony hands with all of the tendons showing with sinks in between. Thighs have gotten worse. Started as dents above knees now both thighs are just very skinny with same dents. I am 99.9% sure I've lost muscle in my chest and back. I just know my body and the muscles that are usually there whether I lose weight or not have completely shrunken. I look skinny even though I've been eating so much. I absolutely have muscle loss which makes it very hard to think all the twitching is benign.

I have no loss of function.. But I do feel weaker. My wrist hurts terribly when I pick up something heavy. I think I can still do everything but not sure if this is the beginning of weakness so I just haven't reached loss of function yet. I also have a lot of stiffness in fingers and shoulders now.

So do I sound like a person with als? I have looked for other causes of twitching and atrophy but wow als comes up everytime. Are there other things that can cause twitching and then muscle wasting throughout the body - hands, forearms, back, chest, thighs. And in 2 months pretty much. My twitching started in February but disappeared and started back 2 months ago.

I have no one to talk to about these things. There has never even been a recorded case of als on this island. There are no neuromuscular specialists. Only neurologists. This really worries me about getting help.

Please any opinions whether you think I'm crazy or not.
 
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