jschex
New member
- Joined
- Jul 16, 2013
- Messages
- 4
- Diagnosis
- 06/2013
- Country
- US
- State
- Louisiana
- City
- Denham Springs
I recently asked for and read through my neuro's case notes on me, which confused me more than ever about what my diagnosed may, or may not be. Let me preempt this comment by saying he's triple board certified in Neurology, Neuromuscular medicine and Immunology. His notes state:
"CSF showed high protein and the NCS/EMG showed evidence of MMN with CB. Progressive paresis, dysthesias with combined UMN and LMN signs. Demyelinating disease of the CNS and PNS (MMNCB)."
I was originally diagnosed with Transverse myelitis (spinal cord) and then CIDP. I have lesions in both. But, I'm completely confused about why he's calling this MMN if I have both UMN and LMN signs. I have spent nearly three years on Ivig, which works, but now seems to be losing effectiveness. And, I have had one dose of Rituxan which was a miracle for about a month then I slid back downhill. Thoughts? Anyone?
"CSF showed high protein and the NCS/EMG showed evidence of MMN with CB. Progressive paresis, dysthesias with combined UMN and LMN signs. Demyelinating disease of the CNS and PNS (MMNCB)."
I was originally diagnosed with Transverse myelitis (spinal cord) and then CIDP. I have lesions in both. But, I'm completely confused about why he's calling this MMN if I have both UMN and LMN signs. I have spent nearly three years on Ivig, which works, but now seems to be losing effectiveness. And, I have had one dose of Rituxan which was a miracle for about a month then I slid back downhill. Thoughts? Anyone?