SavoringLife
Active member
- Joined
- Aug 5, 2008
- Messages
- 32
- Reason
- Learn about ALS
- Country
- US
- State
- CT
- City
- Southbury
Hello all,
We are new to this board (this is our first post), but after reading previous threads, we are certain one of you will be able to help us. Today, my husband was given a diagnosis of a motor neuron disease, however the neurologist said he wasn't ready to be specific on which MND as my husband presents an atypical (and conflicting) set of symptoms. So, we are posting here today to see if anyone else has experienced this. His symptoms are: neck flexion & side-to-side weakness, hyperreflexia, clonus, fasciculations, weak voice, dysphagia, shoulder & arm weakness, cramping all over. The conflicting things are that he still has all his fine motor skills, lots of leg strength, elevated muscle enzymes (CPK and aldolase, which usually indicate muscle myopathy, not MND), no foot dropping or head dropping and the muscle biopsy showed no denervation, however it also didn't have any inflammation.
Thanks so much for any insight or help you can give us!
We are new to this board (this is our first post), but after reading previous threads, we are certain one of you will be able to help us. Today, my husband was given a diagnosis of a motor neuron disease, however the neurologist said he wasn't ready to be specific on which MND as my husband presents an atypical (and conflicting) set of symptoms. So, we are posting here today to see if anyone else has experienced this. His symptoms are: neck flexion & side-to-side weakness, hyperreflexia, clonus, fasciculations, weak voice, dysphagia, shoulder & arm weakness, cramping all over. The conflicting things are that he still has all his fine motor skills, lots of leg strength, elevated muscle enzymes (CPK and aldolase, which usually indicate muscle myopathy, not MND), no foot dropping or head dropping and the muscle biopsy showed no denervation, however it also didn't have any inflammation.
Thanks so much for any insight or help you can give us!