anonymousthanks
New member
- Joined
- Apr 19, 2020
- Messages
- 2
- Reason
- Other
- Diagnosis
- 00/0000
- Country
- UK
- State
- HP
- City
- Portsmouth
Hi everyone, thank you for the forum.
So I've had fasiculations that I've known about for maybe a month.
But I'd begun to be a little reassured by people saying that BFS fasiculations tend to be all over the body etc.
Then I read this on a Q&A site with someone cited as being a doctor, it seems contradictory to what reaasurers on this forum say and therefore almost as if less fasiculations may actually be a bad sign, especially if their location is random, could anyone explain please? Here is the Q&A:
Fasciculations Frequency “definition”
I have read in “principles of neurology” that benign fasciculations tend to be more frequent and constant in location than the malignant ones. What do they mean by FREQUENT? 1. More frequent in EMG: once it fires the frequency of each “muscular jump” is higher (shorter intervals between each fasciculation) 2. Or, maybe they mean the clinical way: that the patient gets them more, feels more fasciculations in a given muscle -the frequency of each such “battery” of fasciculations is higher. HE gets more twitches?
What do you think they mean 1 or 2?
Answer:
It is 2, referring to frequency in clinical way
Comment:
So according to your clinical experience: the random twitchers, those who get them few times a day only and every time in totally different location (a twitch in the calf muscle once every hour or less, for example)- these are the twitchers who should worry more about als? * More than the twitchers who have them continuously in the same muscle?
Answer:
Yes, this is true, it is good clinical assumption to follow, but it is not perfect, as surprisingly some patients with ALS are oblivious to their fasciculations.
Source: Amyotrophic Lateral Sclerosis (ALS) - TeleEMG
So I've had fasiculations that I've known about for maybe a month.
But I'd begun to be a little reassured by people saying that BFS fasiculations tend to be all over the body etc.
Then I read this on a Q&A site with someone cited as being a doctor, it seems contradictory to what reaasurers on this forum say and therefore almost as if less fasiculations may actually be a bad sign, especially if their location is random, could anyone explain please? Here is the Q&A:
Fasciculations Frequency “definition”
I have read in “principles of neurology” that benign fasciculations tend to be more frequent and constant in location than the malignant ones. What do they mean by FREQUENT? 1. More frequent in EMG: once it fires the frequency of each “muscular jump” is higher (shorter intervals between each fasciculation) 2. Or, maybe they mean the clinical way: that the patient gets them more, feels more fasciculations in a given muscle -the frequency of each such “battery” of fasciculations is higher. HE gets more twitches?
What do you think they mean 1 or 2?
Answer:
It is 2, referring to frequency in clinical way
Comment:
So according to your clinical experience: the random twitchers, those who get them few times a day only and every time in totally different location (a twitch in the calf muscle once every hour or less, for example)- these are the twitchers who should worry more about als? * More than the twitchers who have them continuously in the same muscle?
Answer:
Yes, this is true, it is good clinical assumption to follow, but it is not perfect, as surprisingly some patients with ALS are oblivious to their fasciculations.
Source: Amyotrophic Lateral Sclerosis (ALS) - TeleEMG