kawinpr
Member
- Joined
- Feb 1, 2017
- Messages
- 14
- Reason
- Learn about ALS
- Country
- US
- State
- NY
- City
- Queens
Hi there. This is my second post here. I am a 40-year old Asian male from Thailand. I will try to be clear with my English. Thank you so much for taking your time to read my post. My apologies for a very long post.
First of all, I have read the stickies many times to try to convince myself that I don’t have ALS… but I couldn’t with my persistent symptoms and conflicting test results.
My symptoms started in January this year when I noticed mild weakness in left leg and a bit of balance problem when I walked.
Current Self-symptoms (since January):
- Legs: Heavy and tight feeling in legs when walking (left more than right) and sore leg muscles. Mild cramp from time to time. Walking upstairs become more difficult as my legs get tired after 1 - 2 floors. I test my leg strength daily by doing single calf raise, walking on toes / heels. I can still do these but it becomes increasingly more difficult – left leg would be shaky and have a lot of joint cracking. Main weakness is in left pelvic / thigh muscle because I can hardly raise my leg against the push by the doctor when testing strength.
- Left arm: Constant aching in shoulder, bicep, wrist and fingers. My shoulder would have burning pain when I raise my arm for a long time – combing my hair, using cell phone, etc. I don’t see change in dexterity but aching wrist and fingers bother me. Left bicep is noticeably smaller than right bicep (I’m right dominant). I’m trying to convince myself that all these are due to my cervical spine problem.
- Widespread fasciculation!!!: Body-wide twitching since February. Mainly in calf and thigh but also under feet, hands, biceps, shoulders, abdomen, buttock, neck, eyelid, upper lip. Sometimes, trunk muscle would be twitching after I cough. No tongue fasciculation so far (I asked a doctor to check). I have been diagnosed with generalized anxiety but this is the first time in my life I ever experience fasciculation like this.. which worries me.
- I do not notice slurred speech or swallowing / drinking problem so far.
Test history and doctor consultation:
(21-Jan-17): EMG#1 on left leg by Dr. WN (BH hospital): ABNORMAL study. EMG of selected muscles in the left lower extremity representing L2-S2 myotomes showed mild ongoing denervation (psw 1+) in gastrocnemius and biceps femoris muscles. EMG of left lower lumbar paraspinal muscles showed mild ongoing denervation changes (psw 1+). Impression: Findings are suggestive of mild left lower lumbosacral (L5-S1) radiculopathy; more pronounced at S1 level.
(22-Jan-17): MRI Lumbar Spine (BH hospital): Mild degenerative changes of lower L disc with mild bulging discs; without compressive lesions to the nerve roots or Cauda Equina. <--This concerns me because it doesn’t support impression above.
(6-Feb-17): EMG#2 on both legs, left arm and neck by Dr. WN (BH hospital): ABNORMAL study. EMG of selected muscles in the left upper and bilateral lower extremities representing C5-T1 and L2-S2 myotomes respectively showed mild ongoing denervation (psw 1+) in bilateral gastrocnemius and bilateral biceps femoris muscles. EMG of bilateral lower lumbosacral paraspinal muscles showed mild ongoing denervation (psw 1+; fib 1+). EMG of the left mid thoracic paraspinal muscles and genioglosus muscles was normal. Impression: Findings are suggestive of mild, ongoing, bilateral lower lumbosacral (L5-S1) radiculopathy. <--Now it’s bilateral. How convenient!
(12-Feb-17): MRI Spine C + Sag Whole Spine (BDMS hospital): Impression: **Cervical spondylosis and degenerative disc disease, diffuse posterior HNP with central spinal and foraminal stenosis at level of C4-5, C5-6 and C6-7 and resultant nerve roots compression. **Normal cord and without edema, gliotic or ischemic change. A 5x8 mn perineural cyst (Tarlov cyst) is seen at left side (C7 – T1).
(13-Feb-17): EMG#3 on legs by Dr. KK (BDMS hospital): NORMAL study. EMG on both medial gastrocnemius, tibialis anterior, vastus medialis, gluteus medius, gluteus maximus and FDI were normal (psw 0/10; fib 0/10). There is no evidence of lumbosacral radiculopathy on both sides or acute/chronic denervation in all muscles tested. Therefore, it is not consistent with ALS diagnosis. There is also no evidence of polyneuropathy in both lower limbs or focal neuropathy in all nerves tested. <--So, according to this doctor, I do not have lumbar radiculopathy and I’m perfectly normal.
(18-Mar-17): EMG#4 on legs and arms by Dr. KK (BDMS hospital): NORMAL study. EMG on left biceps, left biceps femoris longus, both medial gastrocnemius, vastus medialis, tibialis anterior, FDI and bilateral L5 paraspinal muscles were normal. There is no evidence of focal neuropathy in all nerves tested or polyneuropathy in both hands and feet. There is also no evidence of acute or chronic denervation in all muscles tested from 4 limbs or lumbosacral radiculopathy on both sides. Therefore, this study is not consistent with MND or ALS. <--Can I just move on?
(17-April-17) I had pulmonary function test, chest x-ray, ECG, heart ultrasound and Q-Stress test at PYT2 hospital because I had chest tightness for 2-3 weeks and felt like I couldn’t breathe in deeply when lying down. All tests came back normal. Chest tightness symptom has now gone.
(19-April-17) I met with Dr. CD (RH hospital) who, from what I heard, has high reputation in the area of neuromuscular disease in Thailand. He went through all my medical records, and without performing any clinical tests, he totally dismissed my symptoms. He said there are only 4-5 doctors in Thailand whom he would trust in performing EMG and Dr. KK (BDMS hospital) is one of them.
(Feb – Present): I have also been seeing a physical therapy doctor at BH hospital once a month as they have diagnosed that all my symptoms come from degenerative disc disease. Each time, he would perform strength tests and reflex tests on me. So far, clinical weakness has not been mentioned and there has been no positive sign of Babinski test, Hoffman test, etc. According to him, my symptoms come from L-spine issue (my posture) and short leg back muscle. So, he recommends adjusting my posture and stretching exercise.
I have a few questions:
1) Can mild acute denervation shown in EMG be the result of the EMG needle itself?
2) A doctor I met said EMG test results are operator-dependent. Is that what causes different results between Dr. WN and KK? Then, who’s right?
3) What should be next step for me? Should I get confirmation from a 3rd doctor? I still have persistent undiagnosed symptoms which have progressed a little worse.
Any thoughts & advice is appreciated. Thank you again for having read my post.
First of all, I have read the stickies many times to try to convince myself that I don’t have ALS… but I couldn’t with my persistent symptoms and conflicting test results.
My symptoms started in January this year when I noticed mild weakness in left leg and a bit of balance problem when I walked.
Current Self-symptoms (since January):
- Legs: Heavy and tight feeling in legs when walking (left more than right) and sore leg muscles. Mild cramp from time to time. Walking upstairs become more difficult as my legs get tired after 1 - 2 floors. I test my leg strength daily by doing single calf raise, walking on toes / heels. I can still do these but it becomes increasingly more difficult – left leg would be shaky and have a lot of joint cracking. Main weakness is in left pelvic / thigh muscle because I can hardly raise my leg against the push by the doctor when testing strength.
- Left arm: Constant aching in shoulder, bicep, wrist and fingers. My shoulder would have burning pain when I raise my arm for a long time – combing my hair, using cell phone, etc. I don’t see change in dexterity but aching wrist and fingers bother me. Left bicep is noticeably smaller than right bicep (I’m right dominant). I’m trying to convince myself that all these are due to my cervical spine problem.
- Widespread fasciculation!!!: Body-wide twitching since February. Mainly in calf and thigh but also under feet, hands, biceps, shoulders, abdomen, buttock, neck, eyelid, upper lip. Sometimes, trunk muscle would be twitching after I cough. No tongue fasciculation so far (I asked a doctor to check). I have been diagnosed with generalized anxiety but this is the first time in my life I ever experience fasciculation like this.. which worries me.
- I do not notice slurred speech or swallowing / drinking problem so far.
Test history and doctor consultation:
(21-Jan-17): EMG#1 on left leg by Dr. WN (BH hospital): ABNORMAL study. EMG of selected muscles in the left lower extremity representing L2-S2 myotomes showed mild ongoing denervation (psw 1+) in gastrocnemius and biceps femoris muscles. EMG of left lower lumbar paraspinal muscles showed mild ongoing denervation changes (psw 1+). Impression: Findings are suggestive of mild left lower lumbosacral (L5-S1) radiculopathy; more pronounced at S1 level.
(22-Jan-17): MRI Lumbar Spine (BH hospital): Mild degenerative changes of lower L disc with mild bulging discs; without compressive lesions to the nerve roots or Cauda Equina. <--This concerns me because it doesn’t support impression above.
(6-Feb-17): EMG#2 on both legs, left arm and neck by Dr. WN (BH hospital): ABNORMAL study. EMG of selected muscles in the left upper and bilateral lower extremities representing C5-T1 and L2-S2 myotomes respectively showed mild ongoing denervation (psw 1+) in bilateral gastrocnemius and bilateral biceps femoris muscles. EMG of bilateral lower lumbosacral paraspinal muscles showed mild ongoing denervation (psw 1+; fib 1+). EMG of the left mid thoracic paraspinal muscles and genioglosus muscles was normal. Impression: Findings are suggestive of mild, ongoing, bilateral lower lumbosacral (L5-S1) radiculopathy. <--Now it’s bilateral. How convenient!
(12-Feb-17): MRI Spine C + Sag Whole Spine (BDMS hospital): Impression: **Cervical spondylosis and degenerative disc disease, diffuse posterior HNP with central spinal and foraminal stenosis at level of C4-5, C5-6 and C6-7 and resultant nerve roots compression. **Normal cord and without edema, gliotic or ischemic change. A 5x8 mn perineural cyst (Tarlov cyst) is seen at left side (C7 – T1).
(13-Feb-17): EMG#3 on legs by Dr. KK (BDMS hospital): NORMAL study. EMG on both medial gastrocnemius, tibialis anterior, vastus medialis, gluteus medius, gluteus maximus and FDI were normal (psw 0/10; fib 0/10). There is no evidence of lumbosacral radiculopathy on both sides or acute/chronic denervation in all muscles tested. Therefore, it is not consistent with ALS diagnosis. There is also no evidence of polyneuropathy in both lower limbs or focal neuropathy in all nerves tested. <--So, according to this doctor, I do not have lumbar radiculopathy and I’m perfectly normal.
(18-Mar-17): EMG#4 on legs and arms by Dr. KK (BDMS hospital): NORMAL study. EMG on left biceps, left biceps femoris longus, both medial gastrocnemius, vastus medialis, tibialis anterior, FDI and bilateral L5 paraspinal muscles were normal. There is no evidence of focal neuropathy in all nerves tested or polyneuropathy in both hands and feet. There is also no evidence of acute or chronic denervation in all muscles tested from 4 limbs or lumbosacral radiculopathy on both sides. Therefore, this study is not consistent with MND or ALS. <--Can I just move on?
(17-April-17) I had pulmonary function test, chest x-ray, ECG, heart ultrasound and Q-Stress test at PYT2 hospital because I had chest tightness for 2-3 weeks and felt like I couldn’t breathe in deeply when lying down. All tests came back normal. Chest tightness symptom has now gone.
(19-April-17) I met with Dr. CD (RH hospital) who, from what I heard, has high reputation in the area of neuromuscular disease in Thailand. He went through all my medical records, and without performing any clinical tests, he totally dismissed my symptoms. He said there are only 4-5 doctors in Thailand whom he would trust in performing EMG and Dr. KK (BDMS hospital) is one of them.
(Feb – Present): I have also been seeing a physical therapy doctor at BH hospital once a month as they have diagnosed that all my symptoms come from degenerative disc disease. Each time, he would perform strength tests and reflex tests on me. So far, clinical weakness has not been mentioned and there has been no positive sign of Babinski test, Hoffman test, etc. According to him, my symptoms come from L-spine issue (my posture) and short leg back muscle. So, he recommends adjusting my posture and stretching exercise.
I have a few questions:
1) Can mild acute denervation shown in EMG be the result of the EMG needle itself?
2) A doctor I met said EMG test results are operator-dependent. Is that what causes different results between Dr. WN and KK? Then, who’s right?
3) What should be next step for me? Should I get confirmation from a 3rd doctor? I still have persistent undiagnosed symptoms which have progressed a little worse.
Any thoughts & advice is appreciated. Thank you again for having read my post.