rightrounds
New member
- Joined
- Feb 1, 2017
- Messages
- 8
- Reason
- Learn about ALS
- Diagnosis
- 00/0000
- Country
- US
- State
- NY
- City
- West Point
The doctor looked at me and essentially said I don't see there being any way you have a motor neuron disease at all which was comforting given his expertise. He helps run a clinic for about 15 patients so he knows the symptoms and I trust him in that regard but you can't shake the fact that this is all happening. He word for word said, "this should have no impact on your life. I still expect you to live a full one. I can't promise you you won't get ALS sir cancer when you're 45 but I don't see anything now"
As for now he ordered a lot more blood work and they're working on figuring out if has anything to do with the fact I've traveled around the world over the last two years.
He says that at this point he believes it's BFCS which would be tough to explain the hand issues though and the weak joints and slight limp. Don't worry when I say I'm not searching for this disease. I wish I never stumbled upon these things. I'm just somebody who wants to get better. I've always been absurdly in shape so this is all coming at a bit of a difficulty.
The only reason I'm still here (I'm stopping reading everything else on this forum and watching anything else to give my mind a break) is because I hope someone somehow experienced symptoms similar to mine and has some valuable insight. I know you're not doctors but I'm just a young guy who wants some answers.
As for now he ordered a lot more blood work and they're working on figuring out if has anything to do with the fact I've traveled around the world over the last two years.
He says that at this point he believes it's BFCS which would be tough to explain the hand issues though and the weak joints and slight limp. Don't worry when I say I'm not searching for this disease. I wish I never stumbled upon these things. I'm just somebody who wants to get better. I've always been absurdly in shape so this is all coming at a bit of a difficulty.
The only reason I'm still here (I'm stopping reading everything else on this forum and watching anything else to give my mind a break) is because I hope someone somehow experienced symptoms similar to mine and has some valuable insight. I know you're not doctors but I'm just a young guy who wants some answers.