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KarenNWendyn

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Yes, what you describe would be consistent with a stress reaction.

You’ve been cleared of ALS. This forum is here to help support people with ALS and their caregivers. It is not a general anxiety forum. Continuing to post once you’ve been cleared of ALS is inappropriate.

Please go back to your primary care physician with your concerns and work on your anxiety.
 

Blacksheep62

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Karen
My apologies and no disrespect with my post. . I am and continue to be confused about symptoms re: this disease. Thanks for your response
 

Clearwater AL

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Blacksheep, you wrote your background it law. That means you have good
comprehensive reading capability. Most likely you are very well educated but...
so are the Neurologists who have cleared you of ALS.

So, maybe do some study related to health anxiety. Here goes...

There is a scenario called hypochondriasis. A person in a cycle of health
anxiety.

You are being convinced that your symptoms are caused by a terminal disease…
you become anxious and obsessed with frequently checking your symptoms.
As this cycles on… this fear creates dopamine in your brain.

As your hypochondriasis continues over time your brain may actually get
like an addiction for more. The cycle continues.

Thus, you visit doctors repeatedly despite tests showing that everything indicates
you do not have ALS. You may have other issues but your brain keeps
pulling you back to ALS.

You can help yourself break this cycle of fear by logging off this Forum and
work with your doctors. And… consider telling your Neuro you are having a
hard time letting go of ALS.

Hope your doctors help you onto the path of good health. Let ALS go.

Maybe one of our very medically knowledgeable members can better explain
this.
 
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Blacksheep62

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@Clearwater AL/@karrennwendyn

My apologies in advance for posting. I whole heartedly understand the groups situation for which my soul aches for everyone effected by this disease. I am trying to move forward and get out of this rabbit hole. I continue to have increasing symptoms (now in my feet, toes particularly big toe weakening) PAIN in limbs, loss muscle mass/weight and both hand grip and I’m receving contradictory info from medical personnel which further pull you back in. Tried working with my PCP moving forward, however, he admittedly stated he’s clueless to what the problem could be and advised me to ask the neurologist. Also told me my arches dropped in my left foot.

Was seen by my podiatrist, who said my arches were not dropped that’s the construct of my foot thus why you have orthotics for years and he does not see any muscle loss in my foot. Did notice inflammation in left foot.


I included copies of my emgs earlier

My first emg was clean in September. (Legs only) was normal.

My second emg in December stated issue with tibial and a reduced recruitment in abductor hallicus. Neuro said there some atrophy in foot ordered PT

Third EMG stated


This study shows evidence of a median neuropathy at the dght wrist, consistent with the clinical diagnosis of carpal tunnel syndrome. The degree of slowing across the wrist is in the mild range.

2. This study does not show evidence of a diffuse large fiber peripheral neuropathy.

3. This study does not

Blacksheep, you wrote your background it law. That means you have good
comprehensive reading capability. Most likely you are very well educated but...
so are the Neurologists who have cleared you of ALS.

So, maybe do some study related to health anxiety. Here goes...

There is a scenario called hypochondriasis. A person in a cycle of health
anxiety.

You are being convinced that your symptoms are caused by a terminal disease…
you become anxious and obsessed with frequently checking your symptoms.
As this cycles on… this fear creates dopamine in your brain.

As your hypochondriasis continues over time your brain may actually get
like an addiction for more. The cycle continues.

Thus, you visit doctors repeatedly despite tests showing that everything indicates
you do not have ALS. You may have other issues but your brain keeps
pulling you back to ALS.

You can help yourself break this cycle of fear by logging off this Forum and
work with your doctors. And… consider telling your Neuro you are having a
hard time letting go of ALS.

Hope your doctors help you onto the path of good health. Let ALS go.

Maybe one of our very medically knowledgeable members can better explain
this.

show evidence ofa cervical or lumbar radiculopathy.

4. There is no evidence of acute or ongoing denervation.
 

Nikki J

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Hi I believe you were seen by more than one neuro and the last one was a neuromuscular at Hopkins? You don’t get better than that. No evidence of denervation on emg and a no ALS from Hopkins.

If your pcp says ask neuro do so. If neuro says not our issue you can ask if they suggest another specialty. If they have no advice to offer then either approach your pcp again or find a new pcp.

As you have been told since you are cleared of ALS ( by a top ALs specialist no less) we can’t help you here

Good luck
 

Blacksheep62

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Nikki J. Thanks for you response. I apologize my tablet shut off and began updating as I was typing previously. I hate to trouble anyone here. The Nueromuscular I was dealing with is private practice. He Trained and teaches at u of (Maryland) and Hopkins. He is good and hard to get ahold of. Trying to get another PCP. Just trying to get some answers. like others still having issues. Don’t feel it’s anxiety. Did not understand the recruitment issue in EMG #2 and my 3rd emg was clean. I’ve read the symptoms sticky and still weakness in the toes walking, in the inner knees, hands, lost weight/muscle and sporadic swallowing.admittedly my symptoms have been all over the place and makes no sense.
 

KarenNWendyn

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Is this a stress/anxiety reaction??
Most likely. Bulbar would not have been missed by previous testing. Please reread my response to you on April 2. Nothing has changed.

This thread has run its course. Please address further questions to your neurologist. Members of this forum who have ALS or are caring for someone with ALS don’t have the emotional resources to keep handholding your neuroses.
Please take good care and we wish you the best.
 

Blacksheep62

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Most likely. Bulbar would not have been missed by previous testing. Please reread my response to you on April 2. Nothing has changed.

This thread has run its course. Please address further questions to your neurologist. Members of this forum who have ALS or are caring for someone with ALS don’t have the emotional resources to keep handholding your neuroses.
Please take good care and we wish you the best.
Dr. Karen
Thank you for your response. As I mentioned to Niki my post I was seeking clarity on a portion of my emg as I try to obtain a new pcp and my neurologist who is increasingly difficult to get ahold of. I had a computer power issue While in travel status and my message posted prematurely. Respectfully, Not looking for handholding just attempting to get some answers in the medical system maze. I continue pray nightly for you, your families and those associated with this site.
God Bless.
 

Nikki J

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It is not uncommon that a mild abnormality on emg vanishes on a repeat study. Just more evidence that there was nothing significant in the previous emg. No need to reply
 
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