help1127
Active member
- Joined
- Nov 19, 2013
- Messages
- 95
- Reason
- Learn about ALS
- Diagnosis
- 00/0000
- Country
- US
- State
- FL
- City
- Orlando
Happy fathers day.
I have been here for almost 4 years. I had several clean emg's until my last one where my doctor found chronic denervation in my two calf muscles nothing on my thighs or left arm. My doctor said he thinks I may have some type of heriditary motor neuropathy bUT my NCS was clean and I have brisk reflexes all over, positive Hoffman and I can induce clonus by lifting my heel and push it down not all the was and my leg will bounce until I bring my heel down. He said I don't have ALS because I have no sign of weakness.
The problem I have is that I do feel weakness in my legs especially when walking down stairs my legs will shake, plus my left leg doesn't feel like my right. When I say it doesn't feel the same it's that I feel my left leg being normal and my left feels dull and weak. I said this to my doctor but he said he doesn't see weakness.
I been on this roller coaster from its all anxiety to a possible diagnosis of motor neuropathy. But he can't confirm it yet.
Has anyone been through the same situation?
I have been here for almost 4 years. I had several clean emg's until my last one where my doctor found chronic denervation in my two calf muscles nothing on my thighs or left arm. My doctor said he thinks I may have some type of heriditary motor neuropathy bUT my NCS was clean and I have brisk reflexes all over, positive Hoffman and I can induce clonus by lifting my heel and push it down not all the was and my leg will bounce until I bring my heel down. He said I don't have ALS because I have no sign of weakness.
The problem I have is that I do feel weakness in my legs especially when walking down stairs my legs will shake, plus my left leg doesn't feel like my right. When I say it doesn't feel the same it's that I feel my left leg being normal and my left feels dull and weak. I said this to my doctor but he said he doesn't see weakness.
I been on this roller coaster from its all anxiety to a possible diagnosis of motor neuropathy. But he can't confirm it yet.
Has anyone been through the same situation?