mommyof2boys
New member
- Joined
- Jan 24, 2017
- Messages
- 9
- Reason
- Lost a loved one
- Diagnosis
- 00/0000
- Country
- US
- State
- GA
- City
- Columbus
I want to preface this post by saying I have already sceduled an appointment with my doctor in two weeks. I would also like to say that it's incredible and inspiring to read the stories of those afflicted with the disease, and to see that some who are fighting it would lend their time to answer the questions of complete strangers about the very illness they or their loved one has/had is heartwarming. Thank you all for even just reading my post.
My grandmother had this illness and passed before I was ever born. I didn't witness the deterioration but I did witness my mother break down and cry several times over a decade after her mother's passing. I have seen the devastation it causes in that respect.
I unfortunately have had reason to believe that I may possibly have als too, or something similar. Back in October 2016 I sat down on my couch after a shower and felt my legs tingle and twitch all over. It was not visible but was very odd. I even called my mom about it immediately and was pacing and scared after a quick Google search linked that symptom to als. She told me not to worry it was probably because I needed to be more active. With all that was on my plate at the time, I tried to ignore it.
The holidays helped me through it because I ignored it pretty well until right after new years. I became so frightened by the non stop twitching in both legs and my Google searches that I almost had a panic attack and stayed up a full night doing balance and strength tests. I made an appointment that day to go to a doctor but when I showed up my insurance was inactive. So I had to wait.
In the meantime the twitching has never stopped. I barely sleep. I am on this forum for a reason. I looked for answers. I found out that jaw spasms can be an early sign. Back in October I had that in my right side of my jaw and was so worried I had tetanus that I made a trip to the er and got antibiotics and a booster shot. Over the years I have always had a great fear of disease, my family friends and fiance all dismiss my claims now because of all the disorders I was SURE I had but didn't. I am the girl who cried wolf and I am hoping and praying that is the case right now.
Over the past week I have noticed a slight heavy feeling in my legs and felt weakness in my right arm that has since subsided. I was diagnosed with carpal tunnel syndrome at age 15 in my left hand (after a week long obsession with having ms and not getting sleep) and have always had tingling in that hand though I always knew the cause. It had began to do some pretty extreme twitching in all fingers but I dismissed it for ct symptoms. My right hand has begun to periodically do it as well which is why the weak feeling scared me.
It seems as if yesterday and today my legs feel tired quicker and when bending them slowly they quiver. My fiance, frustrated with me, had me push his arms up and down with my legs to test the strength and said they were very strong (he is not a doctor clearly).
I am posting to not only hear from others but to post progress and if someone else comes across this post with the same symptoms, maybe this will help especially once it is resolved. I have no appetite anymore and have become completely consumed by this fear so any advice will be helpful. The whole experience gives me so much respect for those afflicted. Thanks for your time!
My grandmother had this illness and passed before I was ever born. I didn't witness the deterioration but I did witness my mother break down and cry several times over a decade after her mother's passing. I have seen the devastation it causes in that respect.
I unfortunately have had reason to believe that I may possibly have als too, or something similar. Back in October 2016 I sat down on my couch after a shower and felt my legs tingle and twitch all over. It was not visible but was very odd. I even called my mom about it immediately and was pacing and scared after a quick Google search linked that symptom to als. She told me not to worry it was probably because I needed to be more active. With all that was on my plate at the time, I tried to ignore it.
The holidays helped me through it because I ignored it pretty well until right after new years. I became so frightened by the non stop twitching in both legs and my Google searches that I almost had a panic attack and stayed up a full night doing balance and strength tests. I made an appointment that day to go to a doctor but when I showed up my insurance was inactive. So I had to wait.
In the meantime the twitching has never stopped. I barely sleep. I am on this forum for a reason. I looked for answers. I found out that jaw spasms can be an early sign. Back in October I had that in my right side of my jaw and was so worried I had tetanus that I made a trip to the er and got antibiotics and a booster shot. Over the years I have always had a great fear of disease, my family friends and fiance all dismiss my claims now because of all the disorders I was SURE I had but didn't. I am the girl who cried wolf and I am hoping and praying that is the case right now.
Over the past week I have noticed a slight heavy feeling in my legs and felt weakness in my right arm that has since subsided. I was diagnosed with carpal tunnel syndrome at age 15 in my left hand (after a week long obsession with having ms and not getting sleep) and have always had tingling in that hand though I always knew the cause. It had began to do some pretty extreme twitching in all fingers but I dismissed it for ct symptoms. My right hand has begun to periodically do it as well which is why the weak feeling scared me.
It seems as if yesterday and today my legs feel tired quicker and when bending them slowly they quiver. My fiance, frustrated with me, had me push his arms up and down with my legs to test the strength and said they were very strong (he is not a doctor clearly).
I am posting to not only hear from others but to post progress and if someone else comes across this post with the same symptoms, maybe this will help especially once it is resolved. I have no appetite anymore and have become completely consumed by this fear so any advice will be helpful. The whole experience gives me so much respect for those afflicted. Thanks for your time!
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