Hello, I would like to thank anyone taking the time to read this. I am sorry I did not see the link "read before posting" when I posted my brief synopsis of my recent history and current health concern. Although I have had some sense of hope after reading the post I am still left with no answer to my progressing problem. My strength is slowly fading and I continue to have muscle loss. Here is an example. I am building my own home and I needed to drill holes through my concrete walls using a wet core hole saw. This is not an easy task in the best of conditions however I have done this many times in my life. working on my knees I ran the drill for about 20 minutes my legs were really stressed, and I had trouble completing the cut with my arm strength alone. I stopped to take a break. When I stood and tried to walk I struggled to walk. I felt like my muscles in my thighs were so spent they would not respond smoothly. I kept trying to walk and they slowly improved. I was able to continue on for another couple hours after which my legs were really fatigued but needed an additional person to help me apply the pressure needed to complete the cuts. I could walk but with difficulty. This was on Thursday. Friday and Saturday I felt very sore muscle aches mainly in my legs. I feel a bit better today however, not at all fully recovered. Six months ago this would not have caused anything more than an evening of mild fatigue and a little soreness the next morning.
My fasciculations are frequent and more pronounced in my abdomen. I have them in both my upper and lower legs and my arms. I feel fatigue and weakness in my legs the most but somewhat in my arms, symmetric in both.
I have read the EMG report and I was incorrect in calling the results "normal". My Neurologist told me I had signs of carpel tunnel in my right wrist. I'm not sure if the other things mentioned have meaning I do not understand
here is the summary
SUMMARY OF FINDINGS: Skin temperature was maintained at >= 32 ºC. Normal sensory responses of the right sural nerve Normal sensory responses of the right radial and ulnar nerves. Abnormal sensory response of the right median nerve with prolonged onset latency, decreased amplitude and slow conduction velocity. Normal motor response of the right peroneal and tibial nerves Normal motor response of the right ulnar nerve Abnormal motor response of the right median nerve with prolonged latency, normal amplitude and borderline normal conduction velocity. Normal motor response of the right ulnar nerve after 10 seconds of exercise without >100% increment (LEMS screen). Normal F wave responses of the right tibial and median nerves. 3 Hz repetitive nerve stimulation of right ulnar nerve-ADM does not show 10% decrement; RNS was of adequate quality. Abnormal needle electromyography of the bilateral lower extremities, right upper extremity as tabulated below. CONCLUSION: This is an abnormal study. There is electrodiagnostic evidence of a moderate-severe right-sided median mononeuropathy at the wrist (I.e. carpal tunnel syndrome) There is electrodiagnostic evidence of fasciculations, primarily in right gastrocnemius. No electrodiagnostic evidence of neurogenic reinnervation in the right L3-S1, left L5-S1 and right C5-T1 myotomes at this time. No definitive electrodiagnostic evidence of a pre-synaptic neuromuscular junction disorder.
One question I have is this
when muscles die from ALS do you feel the fatigue and soreness as they get weaker or do they just turn off as it seems some people report ?
I have not lost any function at this point other than when I overexerted the muscles in my legs and they would not work normally for a time.
