bw42
New member
- Joined
- Nov 5, 2018
- Messages
- 7
- Reason
- Learn about ALS
- Diagnosis
- 00/0000
- Country
- US
- State
- MN
- City
- Brooklyn Park
Hello,
First off, I had been lurking here for about a year now and read the sticky note and that is why I haven’t posted anything yet. My thoughts and prayers are with you all who have this disease! My situation is a little different and would love for you some advice. Even if you told me to get lost, it might be the advice I need.
I have always been a very healthy person with all my injuries from sports and then a few stomach issues now and then. By stomach issues, I mean a couple of weeks of diarrhea and then it straightens out.
This brings to me fall of October of 2017 when I had a bout of diarrhea again that lasted 3 weeks that progressed to twitching everywhere; arms, legs, scalp. Then I lost my appetite, with that being said, I lost over 20 pounds.
Went and saw my PCP and he ordered about everything under the sun; Cervical MRI, Brian MRI, endoscopy, colonoscopy etc….During this time, they found a lump on my back which was benign and I had it removed. He also sent me to a neurologist who did an exam and had an EMG ordered for my legs. Exam went great no issues and EMG came back as normal too.
As the diarrhea and twitching persisted, I was referred to Mayo. Met with one great Dr who was very thorough and he sent me a long to the neurologist. The neurologist performed her exam and then wanted her own EMG performed. At this time, my right pectoral was smaller than my left but never really paid much attention to it.
The EMG she ordered was for my legs and right arm. It came back with no fasics and everything was normal except for abnormal findings in my right pectoral and right tricep which she chalked up to past neck issues.
I left there feeling good in January as all my twitching stopped but then started having some whacked out dreams. After a month or two had the shakes/tremor, followed by eyes blinking really fast at night for 3-4 days. Went to a psychologist a couple of times put stopped as she left the clinic. A month later my left eye would twitch off and on for about 3 weeks and then followed my right eye. Then some facial twitching upper lip and issues with right foot arch.
This brings me to my latest bout that started in August, began with horrible diarrhea again, which I still have 3 months later, then in October my right back latissimus started with some profound twitching and then started twitching all over my body and can't sleep. My latissimus twitched for about two weeks straight and I have never had something that localized and that long. Now it doesn’t twitch but it went into my right arm a little bit and I can see some atrophy in my shoulder.
Yes, the shoulder atrophy could be from my neck injury. Still have twitching all over but not as much. My right arm seems to getting most of the twitching and I’m really concerned it could be the beginning of something else. Also, my back shoulder does feel different now where I had all the profound twitching and my right hand gets colder too.
I do have a follow-up appointment with a neurologist in 25 days. This is all happening about the same time of year as before…….thoughts?!?
Sorry if I wasted your time but really respect your opinions!
Forgot to ask this...…. can an EMG change a lot in 12 months?
First off, I had been lurking here for about a year now and read the sticky note and that is why I haven’t posted anything yet. My thoughts and prayers are with you all who have this disease! My situation is a little different and would love for you some advice. Even if you told me to get lost, it might be the advice I need.
I have always been a very healthy person with all my injuries from sports and then a few stomach issues now and then. By stomach issues, I mean a couple of weeks of diarrhea and then it straightens out.
This brings to me fall of October of 2017 when I had a bout of diarrhea again that lasted 3 weeks that progressed to twitching everywhere; arms, legs, scalp. Then I lost my appetite, with that being said, I lost over 20 pounds.
Went and saw my PCP and he ordered about everything under the sun; Cervical MRI, Brian MRI, endoscopy, colonoscopy etc….During this time, they found a lump on my back which was benign and I had it removed. He also sent me to a neurologist who did an exam and had an EMG ordered for my legs. Exam went great no issues and EMG came back as normal too.
As the diarrhea and twitching persisted, I was referred to Mayo. Met with one great Dr who was very thorough and he sent me a long to the neurologist. The neurologist performed her exam and then wanted her own EMG performed. At this time, my right pectoral was smaller than my left but never really paid much attention to it.
The EMG she ordered was for my legs and right arm. It came back with no fasics and everything was normal except for abnormal findings in my right pectoral and right tricep which she chalked up to past neck issues.
I left there feeling good in January as all my twitching stopped but then started having some whacked out dreams. After a month or two had the shakes/tremor, followed by eyes blinking really fast at night for 3-4 days. Went to a psychologist a couple of times put stopped as she left the clinic. A month later my left eye would twitch off and on for about 3 weeks and then followed my right eye. Then some facial twitching upper lip and issues with right foot arch.
This brings me to my latest bout that started in August, began with horrible diarrhea again, which I still have 3 months later, then in October my right back latissimus started with some profound twitching and then started twitching all over my body and can't sleep. My latissimus twitched for about two weeks straight and I have never had something that localized and that long. Now it doesn’t twitch but it went into my right arm a little bit and I can see some atrophy in my shoulder.
Yes, the shoulder atrophy could be from my neck injury. Still have twitching all over but not as much. My right arm seems to getting most of the twitching and I’m really concerned it could be the beginning of something else. Also, my back shoulder does feel different now where I had all the profound twitching and my right hand gets colder too.
I do have a follow-up appointment with a neurologist in 25 days. This is all happening about the same time of year as before…….thoughts?!?
Sorry if I wasted your time but really respect your opinions!
Forgot to ask this...…. can an EMG change a lot in 12 months?
Last edited by a moderator: