angievon
New member
- Joined
- Jan 11, 2020
- Messages
- 6
- Reason
- Lost a loved one
- Diagnosis
- 00/0000
- Country
- US
- State
- AZ
- City
- Phoenix
Hello everyone,
I appreciate you taking the time to read this post as there's so many other concerned people on here. I've had strange symptoms that came on suddenly since Thanksgiving. First, it started with trying to get up off the couch and my left leg felt like it wouldn't work... almost like it was asleep - heavy and tingling. Then I had leg cramps/twitches for days and then the twitching spread to my entire body. A month and a half later and I still have twitching all over - mostly in legs, and left side perceived weakness. One morning I tried to lift my left arm above my head and I couldn't, my shoulder was shaky and stiff, then a sensation of hot pain, and just like that it went away and I was able to move it. My left leg has gotten quite stiff and both legs are painful and my thighs/knees are looking much thinner. In the midst of this, I've had fatigue and shortness of breath.
My Nana and my Uncle both passed from ALS and I'm feeling quite concerned. I have a Drs appt next week to start testing. I'm curious if any of this sounds like ALS and if there's any specific tests I should request from my Dr. Thank you in advance.
PS - I am grateful for the knowledge you all share. It's clear that the medical field knows very little about ALS and unfortunately, those who are affected are the ones to help educate. Keeping those with the disease in my heart.
I appreciate you taking the time to read this post as there's so many other concerned people on here. I've had strange symptoms that came on suddenly since Thanksgiving. First, it started with trying to get up off the couch and my left leg felt like it wouldn't work... almost like it was asleep - heavy and tingling. Then I had leg cramps/twitches for days and then the twitching spread to my entire body. A month and a half later and I still have twitching all over - mostly in legs, and left side perceived weakness. One morning I tried to lift my left arm above my head and I couldn't, my shoulder was shaky and stiff, then a sensation of hot pain, and just like that it went away and I was able to move it. My left leg has gotten quite stiff and both legs are painful and my thighs/knees are looking much thinner. In the midst of this, I've had fatigue and shortness of breath.
My Nana and my Uncle both passed from ALS and I'm feeling quite concerned. I have a Drs appt next week to start testing. I'm curious if any of this sounds like ALS and if there's any specific tests I should request from my Dr. Thank you in advance.
PS - I am grateful for the knowledge you all share. It's clear that the medical field knows very little about ALS and unfortunately, those who are affected are the ones to help educate. Keeping those with the disease in my heart.