Worri
New member
- Joined
- Jul 20, 2022
- Messages
- 6
- Reason
- Learn about ALS
- Diagnosis
- 00/0000
- Country
- US
Hello. I am a dad of five boys 41yo and have concerning signs lately. Three weeks ago I suddenly feel twitching in my whole body and my feet were tingling twitching so bad and feel my right arm specifically the biceps stiff. (Still is today). I immediately panicked since I have lost my mom by als 12byears ago. I was taking care of her and I have since those days trauma and fear in the back of my mind of it...it never completely left me.
Knowing this facts and noticing the tingling fasciculations non stoping.for a day and half.I I totally panicked . my aorta was pumping /jerking visible on my belly/abs and while laying down I feelt like from my spine terrible electric shocks pulses... unbearable...and chronic crazy unberable back pain...(not injured or carried heavy stuff)also lost any desire for food..aversion... and not even music i cant hear to soothe things out.
went after 2 day to the Er saying I suspect the worse the doc checked my blood test Said nothing abnormal didnt even lift my shirt to see me and prescribed lorezapam to relax and referred back to my general practioner. General practioner did same thing ..blood checks and didn't even check me physically...but after insisting he referred me to an neurologist. At neurologist appointment (public govt health insurance) he didn't stand up or touched me or physically analyzed nothing I just started mention to him my tremor fasciculations he said go do the emg and bring me regular results and send me on.my way. 2 minutes consultation....
This just fueled my fear...made it way worse... meanwhile my dad lives overseas in Brazil saw my deterioration and bought me home to get checked by local docs. I met an neurologist whom checked me physically and said I don't believe you have als and you dont need emg as you are now..whoever he prescribed me zoloft...25mg now I am taking 50mg ..to treat extreme panic anxiety disorder....whoever I am afraid he didn't carefully checked me...he used his tools but things changed in the last 15 days...
I lost 8kg in 10 days ...I notice extreme fatigue ...my right arm lower biceps is still stiff and sore..[3weeks] when I hold the cellphone it shakes trembles.. fasciculations on hand after holding forva while. just tried the one leg exercises as someone posted and I wobble immediately..did air bycyle exercise on the floor forv1inutes and got extremely sore...my belly was shaking for minutes never had this happened...meaning it is way more difficult to-do same basic essential exercise...I have tingling on foot and fasciculations on right arm and legs feel them also when lying down... paing the abs still pulsing somewaht better but pulsing(zoloft effect after 12vday?,)but now I notice when I smile for more than 3 seconds my cheeks /lips on tleft are trembling /twitching..and also started like a weakness in the troath like its closing on me...shutting down/falling. Alsongetting terible back pain...never had it. .and i still can only fall sleep with lorezapan...
I am panicked to take the emg... for me I feel like playing Russian roulette and reminds my mom emg terrible results.. ...I notice atrophy lost muscle(weight). please help me. Advise... are these common issues? Should i listen to israeli doc or the Brazilian saying testing just gonna make u more panic...anyways the insurance here thevwait list is 3 moth for the test..... any advise on my symptoms? Go for the emg...sorry for my rambling...simply teribly worried about my family.... God bless u all.
Knowing this facts and noticing the tingling fasciculations non stoping.for a day and half.I I totally panicked . my aorta was pumping /jerking visible on my belly/abs and while laying down I feelt like from my spine terrible electric shocks pulses... unbearable...and chronic crazy unberable back pain...(not injured or carried heavy stuff)also lost any desire for food..aversion... and not even music i cant hear to soothe things out.
went after 2 day to the Er saying I suspect the worse the doc checked my blood test Said nothing abnormal didnt even lift my shirt to see me and prescribed lorezapam to relax and referred back to my general practioner. General practioner did same thing ..blood checks and didn't even check me physically...but after insisting he referred me to an neurologist. At neurologist appointment (public govt health insurance) he didn't stand up or touched me or physically analyzed nothing I just started mention to him my tremor fasciculations he said go do the emg and bring me regular results and send me on.my way. 2 minutes consultation....
This just fueled my fear...made it way worse... meanwhile my dad lives overseas in Brazil saw my deterioration and bought me home to get checked by local docs. I met an neurologist whom checked me physically and said I don't believe you have als and you dont need emg as you are now..whoever he prescribed me zoloft...25mg now I am taking 50mg ..to treat extreme panic anxiety disorder....whoever I am afraid he didn't carefully checked me...he used his tools but things changed in the last 15 days...
I lost 8kg in 10 days ...I notice extreme fatigue ...my right arm lower biceps is still stiff and sore..[3weeks] when I hold the cellphone it shakes trembles.. fasciculations on hand after holding forva while. just tried the one leg exercises as someone posted and I wobble immediately..did air bycyle exercise on the floor forv1inutes and got extremely sore...my belly was shaking for minutes never had this happened...meaning it is way more difficult to-do same basic essential exercise...I have tingling on foot and fasciculations on right arm and legs feel them also when lying down... paing the abs still pulsing somewaht better but pulsing(zoloft effect after 12vday?,)but now I notice when I smile for more than 3 seconds my cheeks /lips on tleft are trembling /twitching..and also started like a weakness in the troath like its closing on me...shutting down/falling. Alsongetting terible back pain...never had it. .and i still can only fall sleep with lorezapan...
I am panicked to take the emg... for me I feel like playing Russian roulette and reminds my mom emg terrible results.. ...I notice atrophy lost muscle(weight). please help me. Advise... are these common issues? Should i listen to israeli doc or the Brazilian saying testing just gonna make u more panic...anyways the insurance here thevwait list is 3 moth for the test..... any advise on my symptoms? Go for the emg...sorry for my rambling...simply teribly worried about my family.... God bless u all.
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