Imik
New member
- Joined
- Dec 31, 2020
- Messages
- 4
- Reason
- Learn about ALS
- Diagnosis
- 00/0000
- Country
- US
- State
- CA
- City
- San Diego
Hello, In august of 2019 I started having stiffness/tightness of my left leg. Since then it has spread to both legs, arms, chest and face. June 2020 started having muscle twitching that started in left leg and then quickly moved to multiple areas of my body. Weakness of arms and legs started about a month after twitching started. Used to be very active but now have worsening stiffness and twitching after exercise so can not do many of the things I used to. Have a physiologic tremor that started left foot in June 2019 and has spread to other leg and both hands. Physiologic tremor dx by 2 movement specialists. I also have shaking or internal tremor of legs, arms and face. This makes it difficult to sleep at night. Have a burning neuropathic pain at lower back and buttocks. Constant clearing of my throat. Normal exam by ENT.
Over the last month have post void urinary dribbling. Have pending appt with urologist.
2 EMGs. Last one in October showed findings that can be seen in MND. I can post Summary of findings. Last EMG done at local health system by neuromuscular neurologist. Saw Neuromuscular specialist at University hospital a couple of weeks ago for telemed visit. She said that chance of MND about 10% as she would expect more progression in over a year. Have follow up EMG and visit with her in mid March. Wondering if I should try for earlier appt at another ALS center. Any advice feedback is much appreciated. Thank you for having this forum.
Over the last month have post void urinary dribbling. Have pending appt with urologist.
2 EMGs. Last one in October showed findings that can be seen in MND. I can post Summary of findings. Last EMG done at local health system by neuromuscular neurologist. Saw Neuromuscular specialist at University hospital a couple of weeks ago for telemed visit. She said that chance of MND about 10% as she would expect more progression in over a year. Have follow up EMG and visit with her in mid March. Wondering if I should try for earlier appt at another ALS center. Any advice feedback is much appreciated. Thank you for having this forum.