Anna123
New member
- Joined
- Jul 11, 2020
- Messages
- 4
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- Other
- Diagnosis
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- Country
- UK
- State
- UK
- City
- London
I suffered from mild fasciculations and tremors about 7 years ago and saw a neurologist who gave me the all clear on a physical examination (without EMG or MRI) but suggested I had Fybromyalgia. My GP is not 100% certain this is an actual disease, or just a label given to unexplained random symptoms.
I have suffered from tingling legs arms feet etc from then on but have learned to live with them and ignore them.
However in the last 2 months I have got a lot of very exaggerated fasciculations. My left calf is on the go CONSTANTLY and wakes me at night. I have the odd smaller fasciculation in othere areas i.e arm face and tongue. My left calf feels it has a mind of its own and never stops jumping and twitching. Some of them are huge twitches. I also have had some weird internal vibration symptoms. The internal vibrations are mainly in my abdomen bicepts and tighs.
My GP says I have normal strength in my legs and my reflexs are normal but is sending me back to a neurologist to rule out anything else.
Unfortunately I can not get an appointment with a neurologist until September, which is a long time to wait when you are worried.
My questions are
- Can the ALS fasciculations start before the muscle weakness? Or is it always the case that weakness comes first followed by fasciculations
- Do exaggerated fasciculations as opposed to smaller ones mean anything?
- Are internal tremors a sign of ALS?
I appreciate the time you have taken to read this and look forward to any feedback
I have suffered from tingling legs arms feet etc from then on but have learned to live with them and ignore them.
However in the last 2 months I have got a lot of very exaggerated fasciculations. My left calf is on the go CONSTANTLY and wakes me at night. I have the odd smaller fasciculation in othere areas i.e arm face and tongue. My left calf feels it has a mind of its own and never stops jumping and twitching. Some of them are huge twitches. I also have had some weird internal vibration symptoms. The internal vibrations are mainly in my abdomen bicepts and tighs.
My GP says I have normal strength in my legs and my reflexs are normal but is sending me back to a neurologist to rule out anything else.
Unfortunately I can not get an appointment with a neurologist until September, which is a long time to wait when you are worried.
My questions are
- Can the ALS fasciculations start before the muscle weakness? Or is it always the case that weakness comes first followed by fasciculations
- Do exaggerated fasciculations as opposed to smaller ones mean anything?
- Are internal tremors a sign of ALS?
I appreciate the time you have taken to read this and look forward to any feedback