IdoneDeClare
Member
- Joined
- Feb 15, 2023
- Messages
- 12
- Reason
- Learn about ALS
- Diagnosis
- 00/0000
- Country
- US
- State
- NE
First, I want to say that I can only imagine how much fun it is dealing with an influx of people who came to Doctor Google for medical advice and instead were..idk..terrified into coming here. It likely gets repetitive, but honestly? Thank you for even having the compassion to answer the questions we come with.
I did read the pinned post regarding tongue fasciculations, and I suppose my librarian past has me going "But..can you cite that? Where did he SAY that updated part?"
I am a 42 year old woman who, as far as I know (I only happened to notice when I stuck my tongue out to show someone what iron deficiency paleness looks like, otherwise I don't...inspect it), has had tongue fasc for about a week. They happen when my tongue is extended and at rest in my mouth, though less so when it's at rest. I have a documented history of bruxism to the point of cracking teeth, and I DO have a history of facial tingling due to TMJ stuff.
I do have chronic sinus issues that deal with postnasal drip, and GERD, so I have a multi year history of throat clearing/coughing after eating and drinking and I don't THINK that would be a factor in this. I have asked and no one seems to feel I've got any slurring.
I don't experience foot drop (despite being fat, I can walk on toes and heels), my hand dexterity seems okay? I can still hit 120 wpm when typing. I also have health anxiety, though it is typically cardiac related.
There's been a brain MRI done within the last 2 months due to TMJ causing numbness of the eye socket (resolved) which was normal for a 42 year old. I have osteophytes of the C5C6 that approach but do not touch the cord. I am, currently, uh...rather severely iron deficient, but nothing I can find indicates iron deficiency can lead to tongue quivering/fascs.
Which is to say..I have tongue fascs. I have seen my doctor, who said, "I mean, it looks weird? But I swear mine has done that..and I'm fine. It's probably nothing? I know it will bug you though, so I'll send you to a neuro just in case."
I have a call to said Neuro waiting to get an appointment.
I am not, by any means, trying to make light of anyone's struggle. I have provided care for a terminal loved one, and I've watched the toll a terminal diagnosis has taken on someone. I am just, for lack of any better words, terrified to my absolute soul that this is motor neuron disease. I CAN feel some of the larger twitches on the top of my tongue near the tip, but the small quivering around the outside? No.
Does anyone have experience or feel it's an actual point where I would need to be concerned? I am not going to go to the neuro to demand any specific testing, only that my doctor hopes that perhaps he can/will reaffirm her belief that it's just something odd? But it's definitely not something I've had before recently.
I truly appreciate your insight, and I promise that I will not dismiss it.
I did read the pinned post regarding tongue fasciculations, and I suppose my librarian past has me going "But..can you cite that? Where did he SAY that updated part?"
I am a 42 year old woman who, as far as I know (I only happened to notice when I stuck my tongue out to show someone what iron deficiency paleness looks like, otherwise I don't...inspect it), has had tongue fasc for about a week. They happen when my tongue is extended and at rest in my mouth, though less so when it's at rest. I have a documented history of bruxism to the point of cracking teeth, and I DO have a history of facial tingling due to TMJ stuff.
I do have chronic sinus issues that deal with postnasal drip, and GERD, so I have a multi year history of throat clearing/coughing after eating and drinking and I don't THINK that would be a factor in this. I have asked and no one seems to feel I've got any slurring.
I don't experience foot drop (despite being fat, I can walk on toes and heels), my hand dexterity seems okay? I can still hit 120 wpm when typing. I also have health anxiety, though it is typically cardiac related.
There's been a brain MRI done within the last 2 months due to TMJ causing numbness of the eye socket (resolved) which was normal for a 42 year old. I have osteophytes of the C5C6 that approach but do not touch the cord. I am, currently, uh...rather severely iron deficient, but nothing I can find indicates iron deficiency can lead to tongue quivering/fascs.
Which is to say..I have tongue fascs. I have seen my doctor, who said, "I mean, it looks weird? But I swear mine has done that..and I'm fine. It's probably nothing? I know it will bug you though, so I'll send you to a neuro just in case."
I have a call to said Neuro waiting to get an appointment.
I am not, by any means, trying to make light of anyone's struggle. I have provided care for a terminal loved one, and I've watched the toll a terminal diagnosis has taken on someone. I am just, for lack of any better words, terrified to my absolute soul that this is motor neuron disease. I CAN feel some of the larger twitches on the top of my tongue near the tip, but the small quivering around the outside? No.
Does anyone have experience or feel it's an actual point where I would need to be concerned? I am not going to go to the neuro to demand any specific testing, only that my doctor hopes that perhaps he can/will reaffirm her belief that it's just something odd? But it's definitely not something I've had before recently.
I truly appreciate your insight, and I promise that I will not dismiss it.