debbieh
New member
- Joined
- Oct 15, 2007
- Messages
- 4
- Reason
- Loved one DX
- Country
- UK
- State
- Middlesex
- City
- Enfield
Hi All,
My dad has had noticable physical symptoms since May 07 and has progressed rapidly. He no longer has much use of arms or legs and can just manage to alter the position of his recliner, but cannot turn over the television or operate his bed controls. He can still speak but is losing volume, has quite a good appetite and attitude generally. He has had 3 episodes of passing small kidney stones, which I have deduced is down to calcium in his bones leaking into his blood and urine because he can no longer weight bear. His leg bones are really pronounced now, with very little fat or muscle, and I am becoming worried about them breaking. He stays in bed a lot of the time but uses a hoist and commode chair for showering and toileting, and I am worried that as careful as I am, I might break his legs whilst moving him. The hospice nurse who visits was saying did he use his recliner chair any more as he was in bed last time she came. She was asking if his "bottom bones" were broken. Has anyone actually experienced broken bones in a non weight bearing als sufferer? Perhaps you can all put my mind at rest and tell me this hasn't happened, as my dad still has no major breathing or swallowing difficulties, and I am worried that he will go on so long that this could happen, and I dont think I could bear for him to have broken bones on top of all he is enduring.
Thanks,
Debbie
My dad has had noticable physical symptoms since May 07 and has progressed rapidly. He no longer has much use of arms or legs and can just manage to alter the position of his recliner, but cannot turn over the television or operate his bed controls. He can still speak but is losing volume, has quite a good appetite and attitude generally. He has had 3 episodes of passing small kidney stones, which I have deduced is down to calcium in his bones leaking into his blood and urine because he can no longer weight bear. His leg bones are really pronounced now, with very little fat or muscle, and I am becoming worried about them breaking. He stays in bed a lot of the time but uses a hoist and commode chair for showering and toileting, and I am worried that as careful as I am, I might break his legs whilst moving him. The hospice nurse who visits was saying did he use his recliner chair any more as he was in bed last time she came. She was asking if his "bottom bones" were broken. Has anyone actually experienced broken bones in a non weight bearing als sufferer? Perhaps you can all put my mind at rest and tell me this hasn't happened, as my dad still has no major breathing or swallowing difficulties, and I am worried that he will go on so long that this could happen, and I dont think I could bear for him to have broken bones on top of all he is enduring.
Thanks,
Debbie