- Sep 11, 2018
- Loved one DX
Hello. I get it - either we are dying or our beloved friend and family member... so there is little compassion left to go around; but I read such hurtful, almost mean remarks on here to so many unsuspecting posters. Is this a reflection of the times we live in or just this site. We are a unique club, I get that... but why have a support website only to post such nasty responses to people’s questions. Enter at your own Risk should be the sites name. I’m sure I’m asking for a good scolding with this post, but truly it hurts me and mt PAL was embarrassed at the postings and very turned off by the mean spirited answers, so much so that she could not seek support here. We all need compassion, even those who may never be diagnosed with MND or ALS. “ What the heck is going on here?” I guess I should go elsewhere.. for support. Please consider addressing the tone to posters on this site or have an auto-response- but a compassionate one for people not yet diagnosed.