Comparison with your history...

Status
Not open for further replies.

Goran

New member
Joined
Mar 17, 2010
Messages
4
Reason
Learn about ALS
Country
SWE
State
sweden
Hi everyone

I'm a 22-year old guy that lives in Sweden and I got in touch with this website today (well actually, I decided to post something on the forum today..).

The thing is that I've been having these, I would say, serious symptoms of what I fear could be PMA/ALS.

I've done one EMG/EMS test and it came back clean. Done MRI scans, clean aswell. Then you might ask why I'm writing this, well, since two years ago, I've had muscular atrophy in my left leg (the whole leg, from the foot to like, the hip) and just three months ago, I've also started to feel it in my left arm.

I've had fasciculations for two years now everywhere on my body, but the atrophy is right now in left leg and left arm.

The reason why I'm posting is because I'm very curious in how it started for you out there. I can say, that in the spring of 2005 (april), I started to feel strange in my left leg and at first I thought it was sciatica. But as time went on, and I actually didnt feel anything else but that "strange feeling" getting just a little worse over the years, two years ago I started to see the changes in the leg. Then, today, I can't do much. I can't run, I walk for short moments or it starts to ache everywhere in the leg. I was very active aswell but nowadays I "only" do the gym but I'm sure that I wont be able to do that either properly because of the arm.


I have some more tests in May this year, but I would really like to know how it started for you.
 

Goran

New member
Joined
Mar 17, 2010
Messages
4
Reason
Learn about ALS
Country
SWE
State
sweden
I would also like to add, that, it's still progressing as we speak. It's very easy to feel something like this going on in your body, despite having doctors and others saying that you're just imagining it. I mean, come on, you KNOW when you're not able to walk properly anymore or when your knee feels busted and "naked" because of the loss of muscles around it. You KNOW when the bottom of your foot feels thin because of the fat loss under it and that your foot has shrunken from one size to another. I just want to hear your stories aswell so that I have something to compare to, because my I start to wonder if my doctor found his license in a box of cereals.


best regards
 

Goran

New member
Joined
Mar 17, 2010
Messages
4
Reason
Learn about ALS
Country
SWE
State
sweden
One more thing to add, also, my right arm feels so much "thicker" when I do like a fist, I can feel the skin just hitting the bone when I do a chin-up in the gym or something, compared to my right arm which feels thick and strong. It's kind of obvious these things and I know that you know what I'm talking about.


br
 

KANSASTOM

Distinguished member
Joined
Jul 2, 2008
Messages
165
Reason
Learn about ALS
Country
US
State
ks
It is time to get another emg, this will give you some direction. You are very young, have you looked into Monomelic Amyotrophy?
 

trfogey

Very helpful member
Joined
Jan 31, 2008
Messages
2,017
Reason
PALS
Diagnosis
07/2007
Country
US
State
NC
Actually, most of us probably don't know what you are talking about because nothing you have described points in any way toward either ALS or PMA. Another disorder, perhaps, but not ALS or PMA. Therefore, there is nothing in our histories that is relevant for comparison to your current situation, despite what your "research" and Dr. Google seem to be telling you.

A clean EMG rules out a diagnosis of either ALS or PMA because the lower motor neuron death characteristic of those two diseases shows up on an EMG and the EMG would not be called either normal or clean. In addition, if you had LMN death going on in your leg since 2005 and in your arm for two years, you would be much poorer condition than you are now-- probably unable to walk at all and certainly unable to do a chin-up.

Good luck to you in your search for a diagnosis. If you give your doctors a chance and stop trying to do their job for them by self-diagnosing on the Internet, I'm sure you'll get the right result.
 

Goran

New member
Joined
Mar 17, 2010
Messages
4
Reason
Learn about ALS
Country
SWE
State
sweden
Hi all

First I would like to thank you for your posts


I'm going to do this EMG now in May, then we will see what it brings up.. Until then I can wait, and I'll post here after that.


Best regards
 

Al

Legendary member
Joined
May 25, 2004
Messages
7,960
Reason
PALS
Diagnosis
10/2003
Country
CA
State
On
Good luck Goran. I think you've got something going but it is most likely not ALS. Let the docs explore.

AL.
 
Status
Not open for further replies.
Top

AdBlock Detected

We get it, advertisements are annoying!

Sure, ad-blocking software does a great job at blocking ads, but it also blocks some useful and important features of our website. For the best possible site experience please take a moment to disable your AdBlocker.

We appreciate your understanding and cooperation!

I've Disabled AdBlock
No Thanks