Live each day with as much gusto as you have and pour love and joy with the intent of no regrets. How do you prepare for ALS? Get your knowledge base and go on with your life until you're diagnosed. In between your doctor visits, dance life.
If you don't have disability insurance GET it NOW!
It took 8 years to receive my PLS diagnosis. I just kept living, doing what I loved, stopped focusing on what was happening and gave more energy into who I loved and what I loved doing. Was it frustrating? YES! If I would have given into the frustration I would not be here today. The stress wondering all the 'what ifs' aint worth it!
Find some delight in life. I think of both Al, Captain Al, Mike, Liz, and a host of other people who HAVE been diagnosed who are movin on. CIndy M who hasn't been diagnosed, may not even have an MND but she's struggling with SOMETHING. SHe's giving of her time to support us. Is it easy? My goodness no!
Where water and rock meet, water keeps going. Flow....
My husband has helped me reel in big fish, caught me before tripping over a 20 ft. cliff, pulled me up from falling when we were out exploring. Jumped in the water after me.
The lights are going out in my body not my mind. I am who I've always been. How do I prepare? By laying my knowledge base of the disease I have now been diagnosed with, ask for help to make the adjustments as they come and focus on going on with my life.
May I be so bold to share to make time to till, plant, water, weed, harvest and share the goods of your life with others.
Frizzel