DGret
Member
- Joined
- May 25, 2021
- Messages
- 15
- Reason
- Learn about ALS
- Diagnosis
- 00/0000
- Country
- US
- State
- AZ
- City
- Scottsdale
Just quickly, hopefully to help others and reinforce mods…
Had fasics for 3.5 years with a small bit of atrophy (?) recently observed. Have had several posts over this time.
My neuro “didn’t think” I had ALS despite all the fasics. Said he had diagnosed and managed over 1000 ALS patients over his career. He is a neuromuscular specialist.
I followed with him over 3+ years as documented. He never felt the need to do an EMG, and being an internist myself, I had some reservations about his exam.
Finally I contacted him with concerns about atrophy. (I’ve had an ongoing cervical spine issue(s) over the years. He brought me in to do an EMG.
I was waiting for him to tell me the bad news, but a 3 spinal segment EMG was normal, aside from a possible triceps radiculopathy…
No denervation. Period. Exam normal strength and reflexes. Period.
Takeaways for me:
1. Mods were spot on all 3+ years.
2. Neuro was right.
3. I wasted 3 years worrying about something that wasn’t there. Won’t get those years back. Damn.
4. None of us are immune to health anxiety; even those of us who are medically trained. Maybe more so.
I’m not saying that misses take place. I’m sure they do, but probably uncommonly in qualified hands.
Thanks, Nikki and Laurie- and best wishes to all.
Had fasics for 3.5 years with a small bit of atrophy (?) recently observed. Have had several posts over this time.
My neuro “didn’t think” I had ALS despite all the fasics. Said he had diagnosed and managed over 1000 ALS patients over his career. He is a neuromuscular specialist.
I followed with him over 3+ years as documented. He never felt the need to do an EMG, and being an internist myself, I had some reservations about his exam.
Finally I contacted him with concerns about atrophy. (I’ve had an ongoing cervical spine issue(s) over the years. He brought me in to do an EMG.
I was waiting for him to tell me the bad news, but a 3 spinal segment EMG was normal, aside from a possible triceps radiculopathy…
No denervation. Period. Exam normal strength and reflexes. Period.
Takeaways for me:
1. Mods were spot on all 3+ years.
2. Neuro was right.
3. I wasted 3 years worrying about something that wasn’t there. Won’t get those years back. Damn.
4. None of us are immune to health anxiety; even those of us who are medically trained. Maybe more so.
I’m not saying that misses take place. I’m sure they do, but probably uncommonly in qualified hands.
Thanks, Nikki and Laurie- and best wishes to all.
